Lyon wrote:Hi Cheryl,av8rgrl wrote: By mid-April, I was in the midst of a full blown exacerbation again. After much discussion back and forth between the clinical trial neuro and my local neuro (450 miles apart), it was finally decided that I could have 3 days of IVSM since I was technically not in the trial, and the blood draw on the 1st revealed no MRTCs. I would have to wait the 90 days for the redraw.
I am now scheduled for the redraw on June 27th.
I have another sinus infection.
I'm guessing just like you and everyone else but I've heard that if mrtc's were detected at the beginning of the trial, they will be again, providing that you aren't doing anything which will "mask" the mrtc's.
At the beginning of the trial I got the idea that steroids could sometimes mask mrtc's for 90 days or even longer.
With the admittance that I'm not comfortable that I completely understand what masking is, and with the admittance that it's easy for me to be patient, I think it's WAY early to let the situation worry you too much, although I completely understand.
av8rgirl wrote:I am not quitting, I'd just like to be a little better informed instead of left hanging...see ya in 90 days. Don't call us we'll call you.
patrickm wrote:av8rgirl wrote:I am not quitting, I'd just like to be a little better informed instead of left hanging...see ya in 90 days. Don't call us we'll call you.
Just want to pitch in here that I do care. We do care. And I have NO idea what's going on with you. I am unscientific as hell, but this baffles the small amount that I do grasp. I get the 90 days after steroids, but I don't get the negative before, esp. with all the new proteins for which they're testing. Sucks. Sorry!!
av8rgirl wrote:Anyway, I am going to see what kind of answers I can get today and maybe shed some light on my frustrations. Maybe even on everyone else's too cuz then I will stop posting all these inane questions and stop being a pest.
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