Tovaxin Open Label Extension Schedules

A board to discuss Tcelna as a treatment for Multiple Sclerosis

Postby Lyon » Fri Nov 07, 2008 8:59 pm

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Last edited by Lyon on Wed Jun 22, 2011 3:39 pm, edited 1 time in total.
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Postby patrickm » Fri Nov 07, 2008 10:48 pm

Hey Bob.
thanks! I wish the best for both of you as well. I'm so delayed that maybe we'll get on the same schedule. I'll be only 1 week away from 6 months from my entrance exam and having to get another MRI. So I really, REALLY hope we get it done that week.
Plz let us know when you get The Call.
p
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Postby Lyon » Sat Nov 08, 2008 9:58 am

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Postby av8rgirl » Sat Nov 08, 2008 3:48 pm

Good luck to both of you! (and everyone else who has made it to the Extension Study!)

And Happy Thanksgiving!
“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford
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Postby HEC » Wed Nov 19, 2008 6:35 pm

I met one of us in person this past Saturday at an MS Society local chapter event. I don't think she's a member on this site yet, but I will encourage her to sign up. Like me, she received vaccine in the double blind phase and tested MRTC negative until her last blood draw in mid September, at which time she was MRTC positive. Her procurement happens this week. No other news to report from Seattle (except that it's not raining at the moment).
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Postby patrickm » Thu Nov 20, 2008 9:12 am

HEC wrote:I met one of us in person this past Saturday at an MS Society local chapter event.


Could you tell by the third eye in the middle of the forehead or was it the telltale smell of lilacs that we all give off?
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Postby TWG » Sat Nov 22, 2008 11:52 am

2nd shot of OLTERMS. No pee, no blood, no MRI, no tests just shot! Met a new person in the study, hello if you read this, forget your name. Also hope you got home OK Lars. I got home at about 10:30pm.
Diagnosed with MS in Feb. 14 2000! Was a Tovaxin guinea pig.
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Postby Lars » Sun Nov 23, 2008 10:10 am

TWG,
Thanks for checking in. I got home about that same time after dodging deer for 6 hours. My 2nd injection details were exactly the same as yours. I suppose Opexa gave up "tweaking" the vaccine each month. It was good to see you. Sorry I missed meeting the other Tovaxinite, we are down to 3 at our site.
See you soon,
Lars
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Postby JanethePain » Sun Nov 23, 2008 11:38 am

TWG wrote:2nd shot of OLTERMS. No pee, no blood, no MRI, no tests just shot! Met a new person in the study, hello if you read this, forget your name. Also hope you got home OK Lars. I got home at about 10:30pm.


I could have used a warning about that "no urine" change. For waaay too long, I've started my drive with a HUGE cup of cranberry juice so that by the time I got to the site, I was ready to give a LOT for the testing. And also, being well-hydrated means you don't bruise so badly during the blood-testing.

I'm not going to know how to act in mid-December zipping around Columbus, OH without that stressed and "too full" look on my face... :D
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Postby av8rgirl » Sun Nov 23, 2008 11:55 am

JanethePain wrote:
TWG wrote:2nd shot of OLTERMS. No pee, no blood, no MRI, no tests just shot! Met a new person in the study, hello if you read this, forget your name. Also hope you got home OK Lars. I got home at about 10:30pm.


I could have used a warning about that "no urine" change. For waaay too long, I've started my drive with a HUGE cup of cranberry juice so that by the time I got to the site, I was ready to give a LOT for the testing. And also, being well-hydrated means you don't bruise so badly during the blood-testing.

I'm not going to know how to act in mid-December zipping around Columbus, OH without that stressed and "too full" look on my face... :D


Guess that means no more pregnancy testing for those of us who had hysterectomies 20 years ago!!! LOL!
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