Requesting Constructive Opinions/Insights

A board to discuss Tcelna as a treatment for Multiple Sclerosis

Requesting Constructive Opinions/Insights

Postby Ant148 » Sun Sep 14, 2008 6:52 pm

if nobody minds, i thought i'd repost this entry to perhaps get more thoughts on the pickle i'm in.
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thanks so much, guys. so i gather from what you write that i should be able to get steroids immediately after procurement and it won't affect my vaccine schedule one bit, right? and a few other questions:
*does anyone know if a 3 day course of steroids is as good as a 5 day course? i've always had a 5 day course before but i'd love to get less if it picked me up off the ground just as well as a 5 day course.
*the trial doc can prescribe steroids? mine is always pushing any treatment responsibility onto my regular neurologist. i'd rather get it through the trial doc if you can't tell.
*think docs can prescribe steroids after a phone consult? i'm in such bad shape, i'd hate to haul ass all the way to their offices.
*anybody know anything about LDN? maybe just maybe i made a grave mistake by taking it all through the trial even though it wasn't allowed. it was my insurance policy in case i was to get the placebo but now in analyzing why i'm in such deep doodoo, i'm thinking maybe that was a terrible mistake. i did do research prior to this whole endeavor and didn't seem like there was any conflict but who knows -- maybe i was wrong? oh and then there's a bunch of supplements i've been taking too that weren't exactly permitted. am i really paying horribly for disobeying?

as far as my IIb trial story, it was uneventful (other than the arduous mri's) until a freight truck hit me head on, figuratively of course. upon analysis as to what may have started this awful relapse, i was fairly certain it was an accidental injury to my big toe which sparked my immune system to go into overdrive which in turn sparked this awful downfall. but after more analysis, i've come to the conclusion i have no freaking idea what went wrong. i just know i need steroids like fish need water.
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Postby Lars » Mon Sep 15, 2008 10:23 am

Ant,
There is a thread about 1/2 way down the main page authored by av8rgirl called Tovaxin and LDN, you need to read it. Also, there is a lot of info and phone #'s posted in the "sticky- schedule" thread.
Good Luck,
Lars
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Re: Requesting Constructive Opinions/Insights

Postby Lyon » Mon Sep 15, 2008 1:00 pm

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Last edited by Lyon on Wed Jun 22, 2011 5:43 pm, edited 1 time in total.
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Postby Ant148 » Tue Sep 16, 2008 6:57 pm

thanks guys for the sensible comments. i actually feel a bit better even with the damn hurricane hiccup. i finally have a pretty good plan but i'm gonna keep it to myself as i'm breaking some rules while awaiting procurement. let's just say, i've steadied my course and hopefully will get the tovaxin some time this century :wink:
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