This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Sat May 18, 2013 11:12 pm


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 29 posts ]  Go to page Previous  1, 2
Author Message
 Post subject:
PostPosted: Thu Nov 13, 2008 7:39 am 
Offline
Family Elder

Joined: Wed Mar 21, 2007 4:00 pm
Posts: 433
Location: Durango, Co
Hey Mike,
It just occurred to me that not only have I never done the "long walk", I don't even know what it is. Could you enlighten me. I suppose protocol site differences are obvious at this point
Lars


Top
 Profile  
 
 Post subject:
PostPosted: Thu Nov 13, 2008 10:37 am 
Offline
Family Elder
User avatar

Joined: Tue Nov 28, 2006 4:00 pm
Posts: 100
Location: Versailles, Kentucky
Lars wrote:
It just occurred to me that not only have I never done the "long walk", I don't even know what it is.


Lars,

At least at my study site, it's a 500 yard walk. They do time how long it takes to complete the walk but it is not required that you have to be able to complete it in any specified time limit.

Mike


Top
 Profile  
 
 Post subject:
PostPosted: Thu Nov 13, 2008 5:40 pm 
Offline
Family Elder

Joined: Wed Mar 21, 2007 4:00 pm
Posts: 433
Location: Durango, Co
Mike,
Seems a pretty good indication (albeit obviously difficult) of ones daily functionality. I guess I don't get why Opexa would bother requiring it if it isn't across the board at trial sites. It has no statistical significance when not done uniformly.
Lars


Top
 Profile  
 
 Post subject:
PostPosted: Thu Nov 13, 2008 6:36 pm 
Offline
Family Elder
User avatar

Joined: Wed Jul 27, 2005 3:00 pm
Posts: 2684
Location: Sydney, Australia
hmtucker wrote:
it's a 500 yard walk.
Thinking of the practicality of 500 yards, do they do it inside in a circle or "laps" of a distance, or do they take you outside?


Top
 Profile  
 
 Post subject:
PostPosted: Fri Nov 14, 2008 8:16 am 
Offline
Family Elder
User avatar

Joined: Wed Jun 13, 2007 3:00 pm
Posts: 222
Location: Historical Glendale, OH: Home of the Squirrrels
Lars wrote:
Mike,
Seems a pretty good indication (albeit obviously difficult) of ones daily functionality. I guess I don't get why Opexa would bother requiring it if it isn't across the board at trial sites. It has no statistical significance when not done uniformly.
Lars


I'm beginning to think the protocol was translated into Martian for some sites, considering how different it's practiced.

The "long walk" is 21 times up and down one of the lesser-trafficked corridors at my site. I pick up a couple of brochures (I'm learning a LOT about epilepsy!) and just do the walk, careful to remember to touch the big old red circle on either wall. 8)

_________________
Jane the Pain


Top
 Profile  
 
 Post subject:
PostPosted: Fri Nov 14, 2008 2:22 pm 
Offline
Family Elder

Joined: Wed May 03, 2006 3:00 pm
Posts: 6063
..


Last edited by Lyon on Wed Jun 22, 2011 3:25 pm, edited 1 time in total.

Top
 Profile  
 
 Post subject:
PostPosted: Sat Nov 15, 2008 8:49 am 
Offline
Family Elder
User avatar

Joined: Thu Apr 03, 2008 3:00 pm
Posts: 216
The long walk at my site was several times up and down a long corridor and it was done almost every visit during the IIb trial.

_________________
“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford


Top
 Profile  
 
 Post subject:
PostPosted: Sat Nov 15, 2008 9:16 am 
Offline
Family Elder

Joined: Wed May 03, 2006 3:00 pm
Posts: 6063
..


Last edited by Lyon on Wed Jun 22, 2011 3:25 pm, edited 1 time in total.

Top
 Profile  
 
 Post subject:
PostPosted: Sat Nov 15, 2008 9:30 am 
Offline
Family Elder
User avatar

Joined: Mon Sep 11, 2006 3:00 pm
Posts: 2197
Location: Dayton, Ohio USA
It's just a part of the EDSS evaluation. You have an eye test, short walk, long walk, and Dr. exam and questions. I had to do it every single visit.

_________________
http://myhopefuljourneyintoactualmsreco ... ogspot.com


Top
 Profile  
 
 Post subject:
PostPosted: Sat Nov 15, 2008 8:27 pm 
Offline
Family Elder

Joined: Wed Mar 21, 2007 4:00 pm
Posts: 433
Location: Durango, Co
To reiterate, never done it, never discussed it, and never heard of it. It may be part of the standard EDSS test but it is obviously not part of Opexas requirements. And again, more ??????'s I wouldn't mind a long walk now and again.
Peace,
Lars


Top
 Profile  
 
 Post subject:
PostPosted: Thu Nov 20, 2008 8:01 am 
Offline
Family Elder
User avatar

Joined: Wed Jun 13, 2007 3:00 pm
Posts: 222
Location: Historical Glendale, OH: Home of the Squirrrels
Lars wrote:
To reiterate, never done it, never discussed it, and never heard of it. It may be part of the standard EDSS test but it is obviously not part of Opexas requirements. And again, more ??????'s I wouldn't mind a long walk now and again.
Peace,
Lars


What I want to know is how many of us got tied up with sites that used the Martian protocol... :P

_________________
Jane the Pain


Top
 Profile  
 
 Post subject:
PostPosted: Sat Nov 22, 2008 12:18 pm 
Offline
Family Elder
User avatar

Joined: Thu Apr 03, 2008 3:00 pm
Posts: 216
JanethePain wrote:
Lars wrote:
To reiterate, never done it, never discussed it, and never heard of it. It may be part of the standard EDSS test but it is obviously not part of Opexas requirements. And again, more ??????'s I wouldn't mind a long walk now and again.
Peace,
Lars


What I want to know is how many of us got tied up with sites that used the Martian protocol... :P

Maybe not the Martian protocol but run by Martians??? does than count...LOL!

Still waiting....now week 5 of this exacerbation with no end in sight...and no steroids being approved.

_________________
“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford


Top
 Profile  
 
 Post subject:
PostPosted: Sun Nov 23, 2008 11:33 am 
Offline
Family Elder
User avatar

Joined: Wed Jun 13, 2007 3:00 pm
Posts: 222
Location: Historical Glendale, OH: Home of the Squirrrels
av8rgirl wrote:
JanethePain wrote:
... What I want to know is how many of us got tied up with sites that used the Martian protocol... :P

Maybe not the Martian protocol but run by Martians??? does than count...LOL!

Still waiting....now week 5 of this exacerbation with no end in sight...and no steroids being approved.


Man oh man, Cheryl, I wish I could send you something to get this thing cleared up before the holidays.

Once upon a time, a well-meaning 'Net friend linked me to some stuff about bee-stings. Now while I would never consider that (bees are our friends), if it had a prayer of working, maybe I could arrange some mother-in-law sting therapy. I rate mine (the m.i.l., I mean!!!) just slightly less toxic than cobra venom. Think it might work? Or shall I pitch this idea to the Defense Department? :P

_________________
Jane the Pain


Top
 Profile  
 
 Post subject:
PostPosted: Sun Nov 23, 2008 11:54 am 
Offline
Family Elder
User avatar

Joined: Thu Apr 03, 2008 3:00 pm
Posts: 216
JanethePain wrote:
av8rgirl wrote:
JanethePain wrote:
... What I want to know is how many of us got tied up with sites that used the Martian protocol... :P

Maybe not the Martian protocol but run by Martians??? does than count...LOL!

Still waiting....now week 5 of this exacerbation with no end in sight...and no steroids being approved.


Man oh man, Cheryl, I wish I could send you something to get this thing cleared up before the holidays.

Once upon a time, a well-meaning 'Net friend linked me to some stuff about bee-stings. Now while I would never consider that (bees are our friends), if it had a prayer of working, maybe I could arrange some mother-in-law sting therapy. I rate mine (the m.i.l., I mean!!!) just slightly less toxic than cobra venom. Think it might work? Or shall I pitch this idea to the Defense Department? :P


First off, I am allergic to bee stings...second off, I already have a MIL that is probably in the same category. We could probably market them together and make a mint!!!

LOL!

I don't think the neuros care about how I am feeling as long as their precious protocol isn't violated....

_________________
“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 29 posts ]  Go to page Previous  1, 2

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. My story

Aggie03

6

2136

Sat Jul 05, 2008 1:53 pm

Lars View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: