Since I've met your neuro personally, do you think he'd mind?
I'm not sure about letting somebody else from the study in. On the other hand, since we're not blinded anymore, what difference would it make?
Still waiting on a response from mine re: treating my current relapse....
let us know! and what happens when you tell them that others are getting to see their results now that we're open label?
When I mentioned that, here's what I was told:
OPEXA sent me this information re your MRI's and MRTC.
Per the sponsor, they are not releasing the study MRI results to the subjects until the final study report has been submitted to the FDA and the manuscripts have been published. As for the MRTC results, that is a proprietary assay used for research purposes and they are not releasing that information either .
I was told that both sets of study data were paid for by Opexa and are not required for standard of care.
Soooo, guess that's your answer. Sorry it couldn't have been more.
Soooo, you can read the between the lines as well as I can! In addition, any time I mention that I get information from other sources, I am told that I am not supposed to interact in any way with other trial patients...
Soooooo.....I am not here.
“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford