HEC wrote:Had an MRI and neuro visit yesterday to decide which CRAB drug to start taking. For me, Copaxone was the best option as R, A & B could all potential mess with my already messed up thyroid. My daily injections will start right around Christmas - oh, joy!
My brain MRI showed one new lesion on the pons which was disappointing to me (I got the vaccine last year and hoped that meant I wouldn't have anything new upstairs), but that was the only thing new since last year's 3T, and it's not triggering any symptoms that I know of. No evidence of atrophy or ventricle weirdness, and no active lesions, so that's all good news. I had an attack last summer involving my right optic nerve (for which I tested MRTC negative during the attack - odd), but there wasn't any evidence of a lesion there, so that was a relief.
As for the Tovaxin trial, my neuro said that while it's hugely disappointing, it's best case scenario to have a trial cancelled due to funding vs. due to an adverse reaction by a study participant. In the event Opexa gets their data together and it looks promising, there is always the potential that they will receive more venture capital funds if they don't get acquired by a bigger company and then they can start a new trial. He said he had 11 other studies going, but none of them would be appropriate for me. If I hear of anything in the future, I will pass it on to the group.
thanks for the update. I've also tested negative for MRTCs during a flare - a confirmed flare! Go figure.
I received an interesting email from the site coordinator yesterday. They wanted an update on all my meds and health status. I found it very curious. The doc doesn't want a termination appt face to face with me but they want an update on all my meds and recent health issues....
HEC, check your Private Messages!