This Is MS Multiple Sclerosis Community: Knowledge & Support

Okay, kids, if I "read" crazy, it's because I'm coming down (I'm pretty sure) with a major sinus infection and am so oxygen-deprived with this congestion I hardly know what I'm doing.

So--some questions, if you will:

1) For those who got the real thing during the trial: if you all can remember, how many days were you "off-therapy" between finishing your last conventional meds and getting your first jab of Tovaxin? I went about 13 months, plus or minus a few days.

2) How long did you have to wait between your Shot # 5 until OLTERMS kicked in and you got re-juiced? That came down to one year (exactly) for me.

3) For you Placebo Kids: how long were you off-therapy between last meds and REAL stuff in OLTERMS?

I guess this is what I'm trying (poorly) to get across: would you be willing to be off therapy for six months to a year while I (and any other strident other lab rats) start asking some questions and raising some cane and trying to find some leads really worth pursuing?

For what it's worth, I got onto that US Government clinical trial site and copied the locales nationwide that participated in our Tovaxin stuff. There isn't any fine detail of contact info--that's my next step, you see.

What I hope to do this week is shoot out snail mails and e-mails to Study Site docs and coordinators asking them if they'd like to add their $0.02 to the plan of getting as many of the 150 of us on board to make the collective pitch to the BIG pharmas.

Hope this is clear. My Sucrets are calling!