av8rgirl wrote: I've had some interesting developments the past couple of months. Nov 19th I had a complete spine MRI and it showed no pathology for MS but it showed a couple of pinched nerves and some other stuff. I was dx'd with cervical radiculopathy. Basically I have been having serious problems with my right arm not moving and some serious pain and numb thumb and forefinger, lower arm. I also have some pain under my arm and shoulder blade.
av8rgirl wrote: Issue number two, at the same time I was having an exacerbation that the clinical trial doc would not treat. Since the trial terminated, my neuro treated it with 3 days of IVSM. The IVSM actually made my arm worse which confirmed the cervical radiculopathy.
av8rgirl wrote: Next, we tried to get copies of my MRIs or any information from clinical trial. Nothing. Proprietary information. I begged for it and finally got a written report last week from my LAST MRI which stated "no changes."
av8rgirl wrote: Well...not true. I had a brain MRI Tuesday. It was compared to my last brain MRI in 2006. I have several new lesions in the parietal lobe. Why would the clinical trial doc withhold this information from me and my neurologist?
av8rgirl wrote: ... They've controlled and controlled, I've played the game, followed all the rules, and then this? Do I know feel compelled to help them find funding to continue the trial? I am more than a little miffed at this latest development. I am not sure exactly what to do.
Now I am wondering if my MRTCs test were negative or positive all those months....makes one wonder....
patrickm wrote:Maybe you could use the MRI as evidence in a lawsuit. That would be a reason not to give you copies of it. I'll bet a subpoena would get them though.
Stray late night thought.
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