av8rgirl wrote:I am going to run this by some of my friends in the legislature and see if there is something that can be done on a higher level.
I am on the Government Relations Committee for the National MS Society and one of the things I do is seek funds for MS Research. I put together groups who are seeking funds and people who write grants and groups who are doing research. We are doing one right now in Boise.
It seems to me that with all the funds that were earmarked for MS Research in the last budget that some of those funds could have been used/released for this purpose.
Just my two cents...
Happy Holidays everyone!
Lyon wrote:Again, I'd have to think that because MS continues to be considered a T cell mediated disease and that the Tovaxin process is reputed to have identified and removed at least some/most of the T cells responsible for MS, THAT is too important of information to fade into obscurity with a small company which could no longer survive a failing economy.av8rgirl wrote:It seems to me that with all the funds that were earmarked for MS Research in the last budget that some of those funds could have been used/released for this purpose.
Personally I think the essential first step would be for a bigwig from the NMSS to talk to a bigwig of Opexa to see if Opexa is even open to outside help.
Lars wrote:One has to wonder how far back the trial would have to go even with additional funding. Back to 11b, 11, 1, etc. I don't think it is realistic to assume, even in the best case that Tovaxin would continue anywhere near where it left off.
JanethePain wrote:Lars wrote:One has to wonder how far back the trial would have to go even with additional funding. Back to 11b, 11, 1, etc. I don't think it is realistic to assume, even in the best case that Tovaxin would continue anywhere near where it left off.
That would probably depend on the testimony of administering neuros. I know that mine was a big cheerleader. I/we should know very shortly about the rest!
patientx wrote:What is the Public Policy for MS? Is there a web link somewhere with an agenda?
RS-Girl wrote:I recieved a copy of this letter from my study coordinator today.
RS-Girl wrote: I was diagnosed 3 years ago this summer and jumped on the tovaxon band wagon as soon as I could. I made it through my first year of the study with flying colors.
RS-Girl wrote: ... If you call over coming fears of small spaces and needles an easy feat.
RS-Girl wrote: I enjoyed having NO site reactions, feeling awake, alert, and like a "normal" person.
RS-Girl wrote: I was told that I did receive the vaccine and was to be moved into the open label portion of the study. For 6 months my MRTC count was negative. Unfortunately, my MRTC count was positive in September of '08 and my blood draw did not occur until mid November. I was told to thank a hurricane for the delay. Then one week after the procurement I received a phone call that the study was dropped.
RS-Girl wrote: ... February 7th I started Copaxone and by February 23rd I was off due to interesting and adverse reactions. I was on antibiotics for cellulitis and I still have bruises the injection welts left me.
I hope this short story helps you in any way
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