pvns2005 wrote:It's been over a year since I was droped from the Tovaxin study due to safety concerns. So I went to Johns Hopkins to do HiCy and I am 9 months post treatment.
I am hear to ask everybody who is still in the Tovaxin study how are you feeling? Does Tovaxin seem to work? Anybody get any better? How do the MRIs look now?
Basically does it WORK??
I seemed to do great during the trials. In fact, at my last visit that none of us knew was my last visit, when my neuro and I pored over first and most recent MRIs, he said, "The only thing better than this is a cure."
You'll find some links to post-cancellation reports somewhere on the menu floating around.
As for "feeling," well, I'd sure love to have a shot about now. But since I was "without" therapy for more than a year BEFORE the study got going and again between TERMS and OLTERMS, I'm not too panicked yet.
Today is supposed to be the big powwow with Cambria. Maybe we'll get some info soon.