I'm down with advancing research no matter what. If this works for some people? bring it on. Hell, I'd take the day off to talk about my experience on it to advance it. Thanks for the surgery well wishes; much better this time as the stent he placed was much lower. The thing I've always thought is this: The "stuff" Tovaxin regulates, and even Campath, which REALLY seems to be working, have maybe found the targets that do the damage and will probably eventually be able to regulate what needs regulated and "push this sucker out" like is the AIDS approach.
My thoughts, and why I've been to Califonia twice, are maybe that by restoring the flow, these things that need regulated just don't misbehave in the first place. So whatever the approach, if it's working for some and giving some relief, I'm in it's corner. I still don't 'trust' anything yet as we all know that relief and "this thing is leaving me alone" have to happen over time. So even as far as the CCSVI and myself are concerned, I'm still holding my cards close as I won't trust anything to be "it" until a long time has passed. I couldn't have said that a while back as I was still feeling pretty good. But now that I'm in the camp where MS affects just about everything, and it does every day, I'll really be able to say with conviction if it's working.
So for me, I don't have interest in getting back in the trial personally since I've already taken other steps whose story still has to play out, but I'll answer any question or fill out any form that they want. Once again, I think that this is showing, like all the pharmacologicals seem to, that if you catch it while it's RR, then you have a much better chance of good change; i.e., not even ever tripping over into progressive. There's more than one way to skin this cat I do believe. I hope I personally have hit on the thing that's causative, but I also hope that stuff like this will give people another opportunity to take a benign acting (no heavy side FX) drug and just never have to deal with it either. So whether it's surgery or stem cells, as long as it's giving people hope and keeping them well, I'm in. It didn't work at all for me, but that could be because I was already progressive. Just thoughts, but the way everyone has viewed my MRI as "unchanged" for so many years now just leads me to believe I was. I mean my one neuro. told me I had seven new lesions one time. My new neuro., viewing the same disk, can't find them. So did he maybe stretch to fill out his roster for Tovaxin since I was so willing? Who knows the answer to that. All I know is that I now have my new neuro. and Dr. Dake both telling me that I don't have any enhancing lesions, "unremarkable MRI", and my old telling me I do/did, so I just don't know about that, but my suspicion was that I was already SP by the time I got the real Tovaxin.