when i started tysabri i got the impression that it would happen quite suddenly, and there would be quite profound differences in ones health.
i have tried to google, i have tried to find out how it manifests itself and how it develops. im now more under the impression that it develops more slowly, and isnt that easy to detect.
and that it isnt just steady downhill, that you can have ups and downs even with pml. have any of you recieved any info on this. ?
i got really ill after my last infusion, and it has taken me until now to recover, but i havent fully recovered, and i am quite weak, i have incresed symptoms, and i also have some new symptoms.
hospital just thinks it is allergic reaction to meds, and that the worsening of symptoms is a worsening of ms. they do not have any explanations, and they havent conducted any tests.
i realise i have just had 7 infusions, and it is highly unlikely that i have developed pml. but how do they know?
<div>I have lived with ms for 8 years. The last year has been hell, I've gone from shite to even worse every single month, until my liberation in May. </div>