Tysabri patient-reported outcomes research program in MS announced
Biogen Idec and Elan Corporation, plc, in collaboration with EPI-Q, Inc. and Avatar International, LLC, have announced the launch of My MS Health, a first-of-its-kind, web-based, patient-reported outcomes (PRO) research program.
My MS Health is designed to track and provide instant reports on patient function and quality of life (QoL) using validated measures over time. This outcomes research program will assess the impact of using My MS Health on patient-healthcare provider communication, and was developed with guidance from a multidisciplinary steering committee of individuals from healthcare and patient communities, as well as academia.
Interested patients and healthcare providers who meet the research criteria can register for the program at http://www.mymshealth.org/
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http://www.msrc.co.uk/index.cfm/fuseact ... ageid/1905