Pink2010 wrote:"Bernstein's Porges estimates the risk (of PML) jumps to 1-in-400 patients after three years of use."
Please note: I do not judge you if you are on tysabri. It works for many; it just is not for me. My posts are for information. We should all try and stay informed.
stillfighting wrote:What is your opinion of CCSVI? Harry
stillfighting wrote:Yes, Elaine Delack whom had Mr. Hinton's studies.. She said she had been able to render herself symptom free.
Herself a nurse and had been given some freedom to medical labs and such.
Most neuros were prescribing the patch and the compounding was done.. I tried it and several other's I knew.. it seemed to be the miracle to end all miracles "on the boards".. then went it way just like many other's ... I never could tell if it was working or not. I had talked with Elaine on the phone and the only reason she could give me was I was too active and needed more histamine.. I guess I did not have enough MS.
stillfighting wrote:No people are looking to find something beyond fatigue management..
Histamine is well known to be based on bee stings.. and does seem to loose effect.
One is left not knowing if it ever worked. These are the things that leave both sides at odds kicking each other.
I have a neuro and he always was willing to prescribe it has were all neuro's of other ms patients I knew... no one continued to take prokarin.
It's still there for any one to take. If they wish
stillfighting wrote:I will not become argumentative with you.. the thought process on bee stings is that they release histamine into the body..
I knew of many ms patients on the prokarin patch... none stayed on it.
My neuro was open minded and did a very large and positive newspaper article on it.
I have always been very proactive in my disease. Do not question me on this...
I am very well aware of Elaine's diet and the patch. She failed to tell this until the patch was failing on so many people ...........they all then had the same chance to.........follow her diet advice and continue the patch.
This is MY experience and your not any one to question it,as you don't know me.
stillfighting wrote:HarryZ, I find you and many like you spread "your knowledge" and cheer every where you go.
I love those types of treatments that come and go and are not anything like the evil meds our neuro's are pushing.
One problem is most of them don't work.
Well I take that back, they might have worked if a person had been on a different diet, or taken more vitamins. Oh taken better vitamins.
Changed their attitude or changed their minds...
I see it all the time, it's called quackary and that's my opinion and sick people are targets every where.. that's why you can't get in to all boards.
Now, your come back will be..
The reason I can't get in on all the boards is they are owned by the drug companies............
Next topic please!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
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