This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Tue May 21, 2013 1:38 pm


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 4 posts ] 
Author Message
PostPosted: Wed Jan 12, 2011 7:02 am 
Offline
Family Member
User avatar

Joined: Sun Jan 10, 2010 4:00 pm
Posts: 34
A group has been started by Declan Walsh, husband of Natalie who now has PML due to use of Tysabri. If you know of someone affected by PML due to Tysabri, please send this link to them.

The friends and family of three people (Angela, Marla and Natalie), who now have PML due to Tysabri. Are united on this page so far. This is, of course, voluntary on the part of the loved ones of these PML patients. They wish to network and join with others like themselves.

Please join us or refer us to those you know who might wish to join us:
http://www.facebook.com/pages/Tysabri-PML-Progressive-Multifocal-Leukoencephalopathy/179672108730515

Thank you.


Top
 Profile  
 
 Post subject:
PostPosted: Wed Jan 12, 2011 7:07 am 
Offline
Family Member
User avatar

Joined: Sun Jan 10, 2010 4:00 pm
Posts: 34
Continuous updated PML case list

http://chefarztfrau.de/?page_id=716


Please make this a Sticky.


Top
 Profile  
 
 Post subject:
PostPosted: Thu Jan 13, 2011 12:41 am 
Offline
Volunteer Moderator
User avatar

Joined: Sat Nov 20, 2004 4:00 pm
Posts: 2713
japentz wrote:
Continuous updated PML case list

http://chefarztfrau.de/?page_id=716


The URL above generates an error message.

"Error establishing a database connection"


NHE


Top
 Profile  
 
 Post subject:
PostPosted: Thu Jan 13, 2011 7:54 am 
Offline
Family Member
User avatar

Joined: Sun Jan 10, 2010 4:00 pm
Posts: 34
Please try it again. I just clicked on it and it went right to the page. It contained the following information.

List of PML diseases under Tysabri (January 2011)

After the re-approval of Tysabri® (Natalizumab), there were the expected/feared PML disorders. I have generated a table with the main available data. The list will be currently updated:
Einträge anzeigen
Suchen
No. Date Land f/m Duration Source
82 17.12.10 Poland (2) m 50 doses internal source
81 13.12.10 USA (35) f 34 doses internal source
80 13.12.10 Germany (20) f 29 month internal source
79 02.12.10 Australia (01) f 24 month via nasdaq.com
78 02.12.10 Germany (19) m 25 month via nasdaq.com
77 02.12.10 USA (34) f 49 doses via nasdaq.com
76 29.11.10 Hungary (01) f 49 doses via nasdaq.com
75 05.11.10 Germany (18) f 33 month via ws-journal
74 05.11.10 USA (33) f 40 doses via ws-journal
73 05.11.10 USA (32) f 44 doses via ws-journalList of PML diseases under Tysabri (January 2011)


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 4 posts ] 

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. Calling all ex-tysabri patients...

amelia

3

2203

Wed Apr 06, 2005 8:01 am

amelia View the latest post

There are no new unread posts for this topic. Seeking Tysabri trial patients

jcvm

5

2907

Tue Aug 16, 2005 11:53 am

DenverCO View the latest post

There are no new unread posts for this topic. Message for All Current Tysabri Patients

msladyinca

0

1988

Wed Jan 31, 2007 4:23 pm

msladyinca View the latest post

There are no new unread posts for this topic. 4 more PML infections, 1 more death in Tysabri MS patients

squiffy2

6

1354

Thu Dec 23, 2010 7:53 am

HarryZ View the latest post

There are no new unread posts for this topic. 10 more PML infections, 4 more deaths in Tysabri MS patients

squiffy2

4

1391

Wed Feb 23, 2011 2:46 pm

HarryZ View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: