New Facebook Group to Network Tysabri PML Patients

A board to discuss the newly-released drug Tysabri, (formerly known as Antegren) as a treatment for Multiple Sclerosis

New Facebook Group to Network Tysabri PML Patients

Postby japentz » Wed Jan 12, 2011 7:02 am

A group has been started by Declan Walsh, husband of Natalie who now has PML due to use of Tysabri. If you know of someone affected by PML due to Tysabri, please send this link to them.

The friends and family of three people (Angela, Marla and Natalie), who now have PML due to Tysabri. Are united on this page so far. This is, of course, voluntary on the part of the loved ones of these PML patients. They wish to network and join with others like themselves.

Please join us or refer us to those you know who might wish to join us:
http://www.facebook.com/pages/Tysabri-PML-Progressive-Multifocal-Leukoencephalopathy/179672108730515

Thank you.
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Postby japentz » Wed Jan 12, 2011 7:07 am

Continuous updated PML case list

http://chefarztfrau.de/?page_id=716


Please make this a Sticky.
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Postby NHE » Thu Jan 13, 2011 12:41 am

japentz wrote:Continuous updated PML case list

http://chefarztfrau.de/?page_id=716


The URL above generates an error message.

"Error establishing a database connection"


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Postby japentz » Thu Jan 13, 2011 7:54 am

Please try it again. I just clicked on it and it went right to the page. It contained the following information.

List of PML diseases under Tysabri (January 2011)

After the re-approval of Tysabri® (Natalizumab), there were the expected/feared PML disorders. I have generated a table with the main available data. The list will be currently updated:
Einträge anzeigen
Suchen
No. Date Land f/m Duration Source
82 17.12.10 Poland (2) m 50 doses internal source
81 13.12.10 USA (35) f 34 doses internal source
80 13.12.10 Germany (20) f 29 month internal source
79 02.12.10 Australia (01) f 24 month via nasdaq.com
78 02.12.10 Germany (19) m 25 month via nasdaq.com
77 02.12.10 USA (34) f 49 doses via nasdaq.com
76 29.11.10 Hungary (01) f 49 doses via nasdaq.com
75 05.11.10 Germany (18) f 33 month via ws-journal
74 05.11.10 USA (33) f 40 doses via ws-journal
73 05.11.10 USA (32) f 44 doses via ws-journalList of PML diseases under Tysabri (January 2011)
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