Whats going to happen if I miss an infusion?

A board to discuss the newly-released drug Tysabri, (formerly known as Antegren) as a treatment for Multiple Sclerosis

Whats going to happen if I miss an infusion?

Postby Sheldon425 » Wed Mar 30, 2011 4:50 pm

Due to my Neuro moving away and the order for my Tysabri infusions running out at the end of the month. There is a chance I will miss my infusion next month. I have an appointment with a new Neuro at the end of May, and they have me on a list so that if they have any cancellations that I will be called in. So now it's just a waiting game with Tysabri case manager or whomever it is calling trying to get my order reauthorized with the new neuro on their recommendation, and it's all just a big mess. I'm kind of scared of what will happen if I do miss my infusion next month and I don't have a neuro to ask and my GP doesn't even know really know what Tysabri is. Last month I went over my thirty days due to illness and it was awful. You wouldn't think that it would be, but I was so fatigued it took me two hours to get out of bed before I called the Hospital to get my infusion done elsewhere in the hospital other than the infusion center since they were closed. Oh now I'm rambling...I'm just a little nervous and I don't know who to ask, if anyone even knows :?:
User avatar
Sheldon425
Newbie
 
Posts: 2
Joined: Tue Mar 29, 2011 3:00 pm

what happens if I miss an infusion

Postby mmk » Thu Mar 31, 2011 8:16 am

Sheldon,

I'm not 100% sure what happens if you miss an infusion. I can tell you my personal experience. One of my infusions last year was delayed for 17 days because I had a surgery and my neurologist said it would be okay to get the infusion a little late. The experience took away any doubts I had about the positive impact Tysabri was having in my life. I was exhausted, in pain, my walking became a little unstable, the vision in my left eye was blury. Everything returned back to the condition it was before the skipped dose.

I don't know about you but, I usually feel Tysabri wearing off about a week or so before the next dose. So, I mean everything returned to how I felt before that wearing off period started.

I hope you get yolur infusion soon!

Marie
User avatar
mmk
Newbie
 
Posts: 2
Joined: Tue Jan 12, 2010 4:00 pm

Postby Sheldon425 » Thu Mar 31, 2011 4:43 pm

Well Crap...Thank you Marie for the input. I was afraid of something like that happening. My fingers are crossed that I get my infusion on time. I do feel the tysabri wearing off about a week before, I guess thats why I'm nervous. About a week before I can't wait to go to the Procedure center to get my infusion, and I HATE needles so it doesn't make sense, until the next day when i feel so much better. Well whatever happens, happens, as my Physical Therapist told me "You wouldn't have been given this disease if you wern't strong enough to handle it"
Shelly
User avatar
Sheldon425
Newbie
 
Posts: 2
Joined: Tue Mar 29, 2011 3:00 pm

Postby Deborah66 » Sat Jul 09, 2011 1:11 pm

I just found this forum today, and I'm so glad I did. I have missed my dose of Tysabri by about a week, and could barely get out of bed this morning. Now I feel better knowing that others have experienced the same reaction. I also feel the "drag" about a week before my next infusion is due.
User avatar
Deborah66
Newbie
 
Posts: 1
Joined: Fri Jul 08, 2011 3:00 pm

Postby gymbuff » Sun Jul 10, 2011 1:05 am

Hi Guys

I had Tysabri Infusion 47 last Wednesday. It was 5 weeks since my previous infusion and I suffered no adverse effects. I never feel a slump prior to my regular infusion. I remember asking on this forum about the effects of missing an infusion. I don't know how long ago but it is there. Maybe the slump has something to do with the length of time on the treatment but I no longer have fears about missing an infusion. I hope all goes well for you and you get sorted out soon :)
User avatar
gymbuff
Family Elder
 
Posts: 103
Joined: Tue Feb 16, 2010 4:00 pm
Location: Ireland


Return to Tysabri (Antegren or Natalizumab)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service