This Is MS Multiple Sclerosis Community: Knowledge & Support

MS patients on Tysabri: 170 PML cases, 33 deaths already (as of 4-th of October 2011).
"...as of the end of September 2011 approximately 63,500 patients were on commercial and clinical TYSABRI therapy worldwide. And that cumulatively approximately 92,200 patients have ever been treated with TYSABRI in the post-marketing setting," said Biogen Idec.

Does anyone know how many total number of patients on Tysabri as of Oct 4?

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Primary Progressive, Onset 10 years ago at age 42, diagnosis 6 years ago, Vit D, Chinese Herbs, Exercise, yoga. So far tried antibiotics, fumaric acid and 4AP. Currently participant in the FTY720/PPMS Trial.<br />

This link will give you some numbers as of Sept 16. Obtaining a number of patients currently on the medication is kind of difficult since it changes constantly as people stop using the drug and others start.

http://www.jwlindseymd.com/id66.html

Harry

from link

and that was 9/16

I'm thinking 33% over 46k doesn't seem horrible. But I won't deny that on some level the PML thing gives me pause.

Biogen Idec announced today:
"...as of the end of September 2011, we estimate that approximately 63,500 patients were on commercial and clinical TYSABRI therapy worldwide, and that cumulatively approximately 92,200 patients have ever been treated with TYSABRI in the post-marketing setting."

Which means 31% of those who have tried the drug have discontinued it for various reasons. For a medication that Biogen told us from clinical trials, there was a 67% reduced risk of relapse...hmmm.

Harry