Australian "Teenager denied MS drug"

A board to discuss the newly-released drug Tysabri, (formerly known as Antegren) as a treatment for Multiple Sclerosis

Australian "Teenager denied MS drug"

Postby CureOrBust » Thu Apr 26, 2012 4:37 am

He has had MS from about 10 years of age.

http://au.news.yahoo.com/video/national/watch/29090259/
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Re: Australian "Teenager denied MS drug"

Postby HarryZ » Thu Apr 26, 2012 6:46 am

CureOrBust wrote:He has had MS from about 10 years of age.

http://au.news.yahoo.com/video/national/watch/29090259/


Difficult situation to find oneself in!

Tysabri has not been studied in children's use and there isn't any data available for the kind of side effects this child might get.

I wonder why any of the other DMD's have not been considered.
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Re: Australian "Teenager denied MS drug"

Postby CureOrBust » Fri Apr 27, 2012 5:51 am

HarryZ wrote:I wonder why any of the other DMD's have not been considered.
Do you mean considered for his treatment? because from memory, I think we actually see him use an auto-injector in the video.
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Re: Australian "Teenager denied MS drug"

Postby HarryZ » Fri Apr 27, 2012 7:18 am

CureOrBust wrote:
HarryZ wrote:I wonder why any of the other DMD's have not been considered.
Do you mean considered for his treatment? because from memory, I think we actually see him use an auto-injector in the video.


This is what really irks me about the current approved therapies for MS.

Yes, he does use an auto-injector in the video. Not sure which drug it is. The mother states that the neuros have told her that if they continue on the present course, (presumably using the DMD that he is currently on) the boy will become permanently disabled!!!

Now wait a minute.....are they saying that if the boy uses an approved DMD, one of the ones that we were told for years helped MS patients, he is going to become permanently disabled??!! One of the ones that TEVA and BIOGEN were recently slapped by the FDA for false advertising and misleading information to MS patients and docs?

No wonder MS patients get confused when seeing all this!
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