Hi, I'm new to this forum, and I live in Toronto, Ontario, Canada.
My 14-year old daughter was diagnosed with RRMS one year ago, and we are almost at the end of our ropes! She has been hospitilized at least 8 times in one year because the MS is extremely active. She seems to get relapse after relapse after relapse and only short periods of remission. She has been on Copaxone, steroids, IVIG, Cyclophosphamide and more recently is receiving Plasmapheresis. The neurologists want to start her on Tysabri, and her JC virus test just came back negative.
First of all, are there any other teenagers out there who have had similar experiences and if so, what, if anything has helped?
Second of all, if there are teenagers who are currently using Tysabri on this forum, I would love to hear from you about your positive and negative experiences with this medication.
Tysabri hasn't been used much on children/teens in Canada, but I understand there are many teenagers in the U.S. and in Europe who have had successful results with Tysabri.
Any valuable information, specifically with teenagers and Tysabri, would be truly appreciated.