I am trying to decide if I should start Tysabri. One of my biggest fears is the rebound effect of having to stop the Tysabri. I don't have any garantee I can take it. I guess 2 yrs max.
Bg-12 is soon to come out we hope. I know it is not suppose to be as good.
I am progressing and that scares me. I do think Ty is the best drug.
I have to wonder if it would be worth it to know all of it would be lost as soon as I quit taking Ty?
I am looking to connect with anyone who stopped taking it and why.
Trying to decide on whether to use Tysabri (or any MS approved drug) is a difficult decision to make. You probably already know about the dangers of PML associated with the drug and there are other concerns such as severe cases of herpes simplex and other infections that can take place because the immune system is compromised by the drug.
And we have read about those who have stopped taking the drug and end up with a lot of problems.
You did not mention how long you have been diagnosed with MS or what level of severity it is with you. If you are doing relatively well at the moment you may want to consider waiting to see what course the disease may take.
Whatever decision you make, be as well informed as possible before making it. Discuss all aspects with your neurologist and don't just rely on one doc's opinion. The best of luck at whatever direction you take.