Jenmen0304 wrote:... I keep my symptoms from my husband because I don't want to worry him.
Jenmen0304 wrote:Just took my blood test to find out if I have the JC virus(hope I spelled right). If I am negative, the neurologist strongly recommends Tysabri. If I am positive, then they want to go with Avonex. Being the positive person that I am at 35, I'm thinking I am gonna be negative. So anyone out there in this MS world want to tell me their experience with Tysabri? Anything I should prepare for? I have a three year old and a 5week old... I am fighting for them. I have began to change my diet slowly and will begin a workout regimen when I am healed from c section. I feel like it is a catch 22: Take meds and get sick from them maybe OR don't and play Russian Roulette. Everyone in my life just says how positive I am and how I will be fine... I keep my symptoms from my husband because I don't want to worry him. Anyways, your experiences with it would help
Jenmen0304 wrote:Thank you for your post Harry!! I thought I am only having few symptoms (tingling, numbness) but after looking on here, I realized I have been having numerous other symptoms (pain behind left eye, burning sensation in legs, etc). So I am grateful for this forum to help educating newbies like myself!! They are giving me the option of Tysabri, Avonex, or the new one-Tecfidera sp?....I have an MRI tomorrow to see if any new activity since last year and then I go back to neurologist to make decision. After looking up facts of Tysabri, I have to be honest- it scares the heck out of me. Maybe they are just being aggressive from the start? I have begun to take D3 daily and am changing diet. Also plan on full regimens of exercise after doc gives me ok (just had c section)... Any help/ suggestions would be kindly encouraged!!!!
Also Harryz upon research for Tysabri it does state it does in fact slow progression of disease.
Jenmen0304 wrote:"2. Slows down the progression of physical disability.
People who were treated with TYSABRI were 42% less likely to develop worsening physical disability — 29% of people who received a placebo had their physical disability worsen, versus only 17% of people who were treated with TYSABRI.
Of the 627 people who took TYSABRI in the 2-year study, more than 8 out of 10 had no physical disability progression."
Harryz am I wrong or just clueless? I'm new to this MS research and can use all the help I can get
In fact, the inventor and co-author warned about Tysabri returning to the market in 2006. They questioned the wisdom of the FDA's approval of this drug.
But Steinman and Langer-Gould expressed reservations about the drug returning to the market. They noted that its effects, while impressive, are in general not much better than what is seen with other available drugs: The risk of relapse dropped from an average of two relapses every three years using other approved multiple sclerosis drugs to one every three years with Tysabri.
“Do you want to expose someone to the risk of death for eliminating one relapse every three years?” said Steinman. “I say no.”
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