Experiences with Tysabri

A board to discuss the newly-released drug Tysabri, (formerly known as Antegren) as a treatment for Multiple Sclerosis

Re: Experiences with Tysabri

Postby leetz » Fri Aug 02, 2013 9:58 pm

oh sorry forgot! tested JC Negative..
GOD BLESS.... CCSVI treatment Dr. Siskin great doc....symptom's improved for about 3 week's (gait, balance, spasticity) now back to square 1...
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leetz
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Tysabri

Postby Keleia » Sat Mar 29, 2014 6:09 pm

Looking into treatment with Tysabri. I'm 54, diagnosed in 2011. Probably had RRMS for at least 15 years...Started Copaxone in November of 2011, but now doesn't seem to be working for me. I'm JC Virus POSITIVE, and my neurologist wants to try me out on Tysabri. I was feeling better about it yesterday, but today...not so much. I'm very concerned of the high rate of contracting PML with a positive JC virus test...I need more information than I seem to be finding, but I want REAL numbers, REAL people to "talk" with about this. Please, if you are in the same situation, but have made your decision, I would like to know what your decision is and why you chose the decision that you have. Thank you so very much!
“Success is never final and failure is never fatal. It’s courage that counts.”

~Jules Ellinger~
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Re: Experiences with Tysabri

Postby keshina90 » Wed Apr 16, 2014 5:23 pm

Hi All :)

Below is my experience with Tysarbri so far. I was diagnosed with MS on the 1st of February 2013

I started on Tysabri on the 25th of September 2013 and have not looked back.
I diagnosed on the 1st of February 2013 and my first treatment was Rebief. Unfortunately it was not the treatment for me as it was not working and I was getting some bad side effects even after 6months. On my 6month check-up I was told it was time to give it up and try something new. I found this to be scary as hell after everything I had just gone through and was worried it would be the same on a new drug.
I decided to go with Tysabri and haven’t looked back. I go to the hospital for my appointment every 4th Thursday to get my infusion and it only takes 2 hours, 1 hour for the infusion and 1 hour to be watched. The only side effect I get from it is a headache after the infusion for the day but I am all good the next day. I try to return to work after my infusion and most days I can, the only time a find it hard is if I was feeling a little under the weather before the infusion.
I love my new treatment as I find it so much nice not to have to infect myself 3times a week. This was instead of having 12 needles in 4 weeks it is only 1.
Every 6-12 months I am having my JC virus check and so far it has been coming back negative.
I have just had the results back from my MRI and they have confirmed that Tysabri is working for me.
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