amelia wrote:Did anyone take Tysabri that was SP? And did it improve you any? I thought I had read about some that did.
amelia wrote:thanks Harry
I feel, my opinion only, that SP is more of an exceleration of the RR part of MS. Explains why most people don't go into it until many years of RR. If Tysabri works on immflamation, then should it not work for SP?
Disease management for progressive disease has recently become the focus of increased attention by MS researchers and clinicians:
The interferons—interferon beta 1a (Avonex® and Rebif®) and interferon beta 1b (Betaseron®)-are approved for people with relapsing forms of MS, which includes those with secondary-progressive disease who have clinical relapses, as well as those with relapsing-progressive disease.
In October of 2000, the FDA approved Novantrone® (mitoxantrone for injection concentrate) "for reducing neurologic disability and/or the frequency of clinical relapses in patients with secondary-progressive, progressive-relapsing, or worsening relapsing-remitting MS." This is the first therapy approved in the United States for secondary-progressive or progressive-relapsing disease. The FDA approval criteria indicate that Novantrone®, which is administered by intravenous infusion, should only be used by those with normal heart function, and for no more than 2-3 years because of possible cumulative cardiac toxicity.
The following chemotherapy agents (although not specifically approved for MS) are being used by physicians in an effort to slow disease progression:
amelia wrote:I have learned something today! I know there is VERY little in meds for PP and SP. What is out there? I have a friend that DR says he feels he has gone this route.
IF the FDA will get off the pot and do something soon.
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