You can't say I didn't try. I just can't for the life of me understand why a grown man without MS would log on everyday to a range of MS websites. MS isn't a hobby and it's not an interesting subject. It's a vile disease and most of us with it log on to find out about reseach, drugs in the pipeline etc. I can't see what your motivation is.
It is being reintroduced and it would have been thoughtful to let the dust settle and let those with the disease decide whether to try it or not.
Biogen and Elan are commercial companies and make money from drugs which they develop - they are not charities or Government. They make all sorts of drugs e.g. for cancer and if they prolong life or reduce pain the drugs are worth every penny.
It doesn't take a genius to look at your postings on the different drugs - hardly any for Copaxone, Avonex, Rebif, Betaferon or Novantrone. Yet you have posted hundreds about Tysabri. Why don't you post stuff under general discussion if you have an interest in MS generally?
I think you have to ask yourself what motivates you to come on these sites. I curse the day I was dx with this disease and the hundred of hours spent on this site - when I think of all the hobbies I can no longer do such as running and scuba diving. You have a choice. What fun / entertainment can you get - none of us with MS want to be here.
always quote the Cochrane report that said Copaxone was next to useless). Fortunately you'll never have to use these drugs but you sow seeds of doubt in the minds of those who do.
My cousin died of breast cancer but I would not contemplate going on a breast cancer website and posting that the drugs are useless and the drugs companies are only interested in money and not patients. I think this view is totally unfair if you actually know some of the dedicated researchers and scientists.
Please don't pull out loads of quotes from this post and respond to them.
If I didn't have MS I wouldn't go near these websites. I certainly wouldn't go on them for a hobby. If they ever come up with a cure I'll be glad to see these sites shut down for good. If I was in your shoes, I'd get myself a more interesting hobby.
Mary wrote:Perhaps a new thread called Pissing Matches is in order? Geez, take it offline, go to personal messages...I wanted to read about Tysabri but instead spent ten minutes trying to get through the Harry and Ian show to see if there was anything new or interesting about Tysabri...
Odd discussion here, a few scare off links as if nobody here can read and what is with you and Tysabri Harry, some people in the trial had mild and some more severe rrms, just like the CRABS trials:
Kurtzke Expanded Disability Status Scale (EDSS) score between 0 and 5.0.
You know, Gary is about a 6.5 on the scale and his disability is pretty darn bad. If it was a 4, it would still interfere GREATLY in his everyday life. If he was ONLY blind, it would be severe. If he ONLY had walking difficulties, if he ONLY had to be catherized daily, etc. I think you get the point. And I believe the above would put him in the 5.0 bracket or lower. I guess it just depends on where you put the word severe!
amelia wrote:Sorry Harry, out of my lack of knowledge I did not know there were more than 1 EDSS scale
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