Tysabri has not been tested on severely affected patients but like your husband, these are the people who are willing to take the risk and try the drug to prevent further deterioration of their condition.
I disagree. It MAY HAVE SHOULD HAVE BEEN, but we know there was a lot of that going on in the trials. There were NOTED people in MISS that had severe MS and it did improve them. It still is no miracle, but if it does 1 iota of help for Gary, then it is worth every penny we will spend, happily.
There were many notations of improvement of sight, walking, spasticity, etc. I am listening to the people speak and NOT the research alone.
I haven't seen any reports describing the results.
Exactly as I stated, I don't listen to JUST research. This was case was not in the trial time and was told by a DR that had nothing to gain one way or the other. I still don't know why you read so much in Tysabri, as your wife if not going to be taking it, as stated by you.
As much as I like you, I am developing a new MS symptom - I'm sick to the stomach of HarryZ constantly posting the same stuff on Tysabri. You must have posted the same anti-Biogen / anti-Tysabri posts a thousand times.
Let the people who have MS talk to their neuro and decide if this drug is for them or not. YOU will never need to go on it. YOU should be enjoying all the things that many with this disease have been robbed of - going for a long walk, a round of golf.
YOU say that you have been interested in MS for 40 years - it's time for a break. Let me pick another disease and you can find another drugs company / drug to focus on. I don't know how much Serono are paying you but it isn't enough. Let Amelia and her husband (and the others on this site) make their own decision in consultation with a medical professional. They don't need you telling them about a rumour you heard while standing at the urinal next to a Chinese sailor.
YOU HATE BIOGEN YOU HATE TYSABRI WE KNOW THAT - IT CAN GO AS A STICKY. But I can't stand any more - I'm not a well man.
Please I beg you - don't post anymore on Tysabri on this site. I don't use any other sites - so please post on them if you really have to.
That inferior MS website - BrainTalk - is where you belong. They like you there. I like you but not when you keep banging on about Tysabri.
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