This Is MS Multiple Sclerosis Community: Knowledge & Support
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Don't be overwhelmed...you didn't get MS yesterday and you don't have to decide what to do today. The answer will become clear to you as you get a grip on what you feel. There's a reason why it's called a catastrophic disease...give yourself a break...
I want to post a reply because I have been reading about Tysabri and would like to communicate with others on the drug. I had my second infusion on January 17 and it kicked my butt for three days. Pain, sleeplessness, and of course worry. Can I expect the infusions to get easier? I have RRMS disagnosed for 8 years. Copaxone was my durg of choice until Tysabri came back. I am so unsure about using this site, but I will get better.
It's better to post than not. I started a thread called tysabru update after third infusion, that's getting a lot of hits and a few posts. I, (and others, I'm sure) would love to hear about how you are doing.
These are probably side effects and will more than likely pass as your body gets accustomed to Tysabri (as a few others have reported this too, and they said that it passes in a couple of days as well - and it doesn't happen with each infusion)...your worry is more than likely adding to your sleeplessness (I'm just guessing as I'm not a dr.) Try not to worry as it causes stress and stress + MS don't mix well, as we all know.
I am so very happy for you both (and Donna too), that you now have a superior efficous medication (Tysabri) to help you fight your MS.
If any of you (or any Tysabri users here that I missed-and I'm sure there are many of you), would like to share your Tysabri experiences on the http://www.mspatientsforchoice.org/ website, which will be helping other MS'ers looking for Tysabri info, please send me a PM with your email address, or send me an email directly at LGLBGL2003@AOL.com for further information :P
Noreen and Pete, thanks for the Lot# and Exp. Date of your Tysabri vials... keep them coming for each infusion you receive...wooohooo!
Take care all,
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