kw202 wrote:Well, thank you all for your answers.
I've decided to go with Tysabri.
Best to you all.
NHE wrote:Hi kw202,
If it's not already in your supplement regimen, then you might want to consider adding omega-3 oils from fish oil. You want to aim for about 1-2 g/day of combined DHA and EPA. The brain is about 60% fat and about 30% of the fat in gray matter is DHA.
lyndacarol wrote:Hi kw202,
We wish you the very best with your choice of Tysabri; but, frankly, I am very concerned – the danger of PML is very real. As I recall reading, PML has even appeared in people who were JCV negative.
Also, as I recall, your vitamin D level was 9.9 ng/mL at one time; then you got it up to 33.3 ng/L. Have you gotten it to and maintained it at 90 (which, I think, your neuro had targeted)? With recent attention on the Coimbra protocol (coimbra-high-dose-vitamin-d-protocol-f57/) I would hope a D3 level in the high-end of the reference range would bring benefits to you.
A longitudinal serological follow-up from the combined AFFIRM and STRATIFY-1 studies showed, however, that only 87% of patients who were anti-JCV antibody negative at baseline remained consistently negative every 6 months over a period of 18 months (53) meaning that nearly 13% could become positive during follow-up.
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