Gary started Cellcept on the low dose side, 500mg a day. Cellcept is know for being slow to act, so we really did not expect much. BUT IMPROVEMENTS ARE HAPPENING! They are slight. Most people would not notice, but as you know, when you deal day in and day out with these diseses, you notice EVERYTHING. His spasiticity is lessening. Not gone, but greatly diminished. Hard to tell if Cellcept is the one behind this, since he is also on a Decadron shot, 10mg, twice a month. He has had only 2 of that dose, but has some 8 mg monthly before that. His eye sight is fluxuating to the good. His walking is slightly better, more fluid movements. Getting up out of a chair, getting on his riding lawnmower, his personal WC, are all better. He has a more relaxed look about him. Gary too was beginning a downward slide. His attacks, from Devic's, was not bad, dibilitating kind, but they were constant. And constant isn't good for either of these diseases. HOPE. It's the only thing all of us have. Gary's Neuro told him that he would not get better. They could just keep him from getting worse, maybe. Devic's can turn very UGLY. More so than MS. Gary quit listening to what Drs said he would have or do or not have or not do. We just live with the hope that things will get better. He works hard to make that happen. THERAPY!!!!! Not just when the therapist comes by. Not just 30 minutes a day. ALL DAY EVERYDAY!!!!! You must fight this. If all you can do is move one finger, then move that finger unitl you can't, rest and do it all over again. That is what has kept Gary going. After one bad attack, he was paralyzed from the upper chest down for a while, he was getting a little better, but still WC bound. I wheeled him to our art/frame shop. There was a tall table there. He would pull his self up to standing, hold onto the table and count to 10. Rest and do it again until he had to rest for a longer period. Many times he did not make it to 10 before he fell back down in the chair. He did this all day every day until he was back up and going.
JMO, I don't believe DRs when they tell you on the onset of an attack that you should go home and crawl in bed for a few days for some rest. I think you will find that you will be there longer than a few days. Rest, but also fight that attack. It helped Gary and Devic's is not that different than a MS attack, except it can be WORSE!