- does this mean it's interesting to you because it's a bad Tysabri story?Interesting to say the least
I wondered where you had gone. You've obviously spent the week trawling the internet for a bad Tysabri story.
Interesting to say the least - does this mean it's interesting to you because it's a bad Tysabri story?
The bottom line is that sufferers have to watch themselves physically and/or mentally deteriorate or take a new drug which might result in death or them being the equivalent of an HIV patient. I know you are trying to provide the sufferer with more information but what would you do if you had MS and was faced with such a decision? Sufferers are caught between a rock and a hard-place and stories like this just make the situation even harder.
Are you suggesting that this kind of research be kept from MS patients and that only the "good" information be released? Good grief, Ian, we already have Biogen/Elan doing that!!!
I think this says it all Harry. Your postings on Tysabri are much more to do with your personal issues with the companies behind this drug. I'm in no way suggesting that there should be any censorship, but I also think that posts should remain unbiased. You only ever post negative stories about this drug, even though you know that some on this site with the condition have taken the difficult decision to have this treatment.
I'm sick of hearing the excuse that you are providing sufferers with additional information to help them with their decision making. Do you really think that telling those who are having Tysabri now that their immune system will be the equivalent of an HIV patient helps? No doubt they can all sleep better in their bed tonight because of your helpfulness!
If you posted a range of articles on Tysabri I might buy into your "I'm giving sufferers information to help themselve decide" story. But from the very start it has all been the bad news. What do you hope to achieve? That sufferers with few other treatment options come off Tysabri / don't start? Who gains then?
Why don't you shock us an come up with a positive Tysabri story to show you are unbiased?
A new more efective treatment should be a celebration, even knowing that increased effectiveness brings bigger risks. How anyone could get pleasure from keep dashing peoples' hopes by bringing a constant stream of negative stories beggars belief. Let the dust settle and let's see how those on Tysabri do after six months.
Harry, take notice, many people are informed and are willing to take a chance rather than live with no hope.
The conflicted and biased research study you refered to was ORIGINALLY and COINCIDENTALLY presented just prior to the Tysabri FDA AC meeting in March. It's old F.U.D which I think was sponsored or funded by TEVA, owners of the Copaxone for MS franchise in a pitiful attempt to slow or even halt FDA re-approval of Tysabri.
I conclude that those TEVA funded medical experts who did that study used misleading terminology to maliciously correlate an UNHEALTHY comprimised and damaged immune condition caused solely by the AIDs pathogen to a much SAFER and HEALTHIER TRANSIENT blockade of Tcells which effectively mitigates the undesireable inflammatory cascade and immune response mechanism of MS during monthly natalizumab therapy. AIMHO
Adios Harry Z.
Interesting that Dr. O'Connor of the St. Michael's MS Clinic in Toronto was the spokesman for this announcement. He has a reputation of being a very eager MS drug prescriber for his patients.
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