A board to discuss the newly-released drug Tysabri, (formerly known as Antegren) as a treatment for Multiple Sclerosis
Here is a link to the website http://www.MSPatientsForChoice.org where some Tysabri patient progress reports have been posted:
and these reports will be made more prominent on the home page of the website over the next few days, more reports will be added, and these reports will be updated.
We ask that other Tysabri patients email their progress reports to the website, at firstname.lastname@example.org, and that those who have already submitted their reports send updates every month or so. Last names will be kept confidential, and even your first name can be kept confidential upon request. All progress reports will be reviewed before posting.
Please feel free to send information about these reports and the request for additional Tysabri Patient Progress Reports to other MS patients, and post the information about the link on other MS websites.
Please also feel free to send us your Tysabri vial Lot# and Expiration date (from other Tysabri infusion patients too-and this can be anonymous as well). You are entitled to this information. We are collecting this information via Lot#'s and Exp. dates to try and calculate how many MS patients are being infused, as that data changes with time.
If you have any add'l questions, you can email me at LGLBGL2003@AOL.COM, or write to the website directly at email@example.com.
Thank you all and take care now,
- Family Elder
- Posts: 104
- Joined: Sun Aug 13, 2006 3:00 pm
- Location: So. Calif.
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