It's all good. I have not been posting much because I am still weaning from my pain meds: if you'll remember, I was taking up to the equivalent of 256 mg of Morphine a day, but in the form of Dilaudid (hydromorphone).
Turns out it's a very tough drug to kick.
I took all the painkillers because I had a stabbing pain in my head for a year... with shocks like my teeth were cracked... and my left ear felt pressure and pain constantly. The headache drove me to my breaking point. I don't know what it was--one neuro did bring up trigeminal neuralgia, but I honestly don't think that was it. I just had a really bad, stabbing pain in my head that made me want to, well... be put out of my misery.
And after the first dose of Tysabri, the stabbing disappeared. If it hadn't happened to me I wouldn't have believed it could happen at all. I felt great. My energy level was back (I can't remember January; I slept through most of it) and I could speak quickly again. That's something that my husband really noticed. I could talk.
I've had four doses of Tysabri so far and I have no complaints. It's like being infused with nothing... no side effects that I can detect.
Now, personally, my energy levels have been lower than at first because I am in withdrawal and I usually have a slight fever. And we all know what that can do to many people with multiple sclerosis... It puts you down. I am easily fatigued.
My right leg will probably always be weak from the knee down. But if I walk carefully I don't limp. Of course, I can't really stand for very long at all; I think a cane/wheelchair is in my future. Whaddyagonnado.
But my vertigo is WAY better. Wow. And there is no problem, no numbness, no tingling in my left arm at all.
In fact, the last time I went to get my infusion my temp was 100.5; I almost didn't get my dose. I explained to the nurse that I was weaning from my meds... I got my Tysabri. *whew*
I will be completely off Dilaudid on June 20th. After my body recalibrates, I will let you know if I feel less fatigued than I did before all of this started. I'm betting I will feel better once I'm off the drugs and I don't have a low-grade fever.
So at this point I'm giving Ty at least 1 thumb way, way up; I'm holding back just a little bit because I want to see how I feel, in, say, August.
I gardened for the first time today in nearly two years. I guess that says something, doesn't it?