TYsabri is back!

A board to discuss the newly-released drug Tysabri, (formerly known as Antegren) as a treatment for Multiple Sclerosis

TYsabri is back!

Postby Me » Fri Jan 26, 2007 9:56 am

I am glad TYSABRI is back! I was on it once in January 2 years ago. I took my husband to NY for his 40th birthday in February and remember waking up that Saturday (2 weeks after my infusion) and turning to my husband and saying "I feel normal" I kept waiting for side effects and they never came. It was pulled off of the market right before my second treatment. I was bummed and went back to Rebiff. I have been on them all. Tysabri is the treatment I LOVE. No shots, no side effects, no 7 hour IV (which I had IVIG for 7 hours once a month, along with my Rebiff shots 3 x a week, for 3 years after steroids did not work. I was steadily getting worse but no "attacks". For me Tysabri has not given me my balance back but I feel so much better. One hour a month infusion "I'll take it".
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Postby lollipop » Fri Jan 26, 2007 4:14 pm

hi Me!
I also tried Ty when it was on the market the last time, but had terrible side effects the weekend it was taken off the market (lower body paralysis), I'm now getting iTy again! My neuro thought Ty is my best bet right now, even though I had that reaction the first time. I have had 4 infusions this time, and instead of instant paralysis of my legs, it seems to be a slow-onset version. I will do one more infusion. That way I gave Ty a fair chance, but I don't know. I have SPMS, so Ty may just not work for me. Well, that's my story. Otherwise no side effects, not even a headache. Good luck!
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Postby Me » Tue Jan 30, 2007 10:04 am

Lollipop,
I am so sorry to hear you had a bad reaction. You just never know with this disease. I hope this time is better. I always question the treatment to say " Would this have happened any way? Did the drug make it not as severe as it could have been? Would it have happened at all without the drug?" I hope it works for you this time. Good luck. Please let me know through this website.
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