Your own neuro doesn't need to be integral in the trial. You could find out who is, and contact the recruiting person; http://www.clinicaltrials.gov/ct/search;?term=fty720+multiple+sclerosis Most of these would have a phone number and/or email (Although I just emailed the one in australia, and it bounced, so i'll try the phone number next week)ewizabeth wrote:I was hoping my doctor would be in the FTY 720 study but I don't think he is. That would be a safe option I think?
renrank wrote: I have improved so much... I was having an exacerbation that began somewhere in late September, and I was even on disability from October until February. My neurologist said, "Tysabri doesn't make you better but I swear you're getting better!!" It has been a wonderful change for me, and I would choose it again and again.
I hope you'll keep us posted as to what your decision is regarding Ty. Good luck with whatever you choose!
CureOrBust wrote:Your own neuro doesn't need to be integral in the trial. You could find out who is, and contact the recruiting person; http://www.clinicaltrials.gov/ct/search;?term=fty720+multiple+sclerosis Most of these would have a phone number and/or email (Although I just emailed the one in australia, and it bounced, so i'll try the phone number next week)ewizabeth wrote:I was hoping my doctor would be in the FTY 720 study but I don't think he is. That would be a safe option I think?
rolled wrote:No way would I try to talk you out of participating in a clinical trial! But, I think if you have not already tried Tysabri then that would be the best course: it has much greater efficacy than FTY-720 and it is safer...
... My guess is that they will recruit young, otherwise healthy relapsing MS'ers, emerge with solid efficacy and tolerable safety data, then slap a black box on the medication to limit liability and market the hell out of it. Recruiting very healthy patients is, IMO, the only way Novartis threads the needle on this one: it is really too dangerous (again IMO) to be approved as a first line treatment. With Tysabri on the market already and proving to be safe and very effective, FTY-720 and Novantrone and LDN and Campath should be used only as 2nd and 3rd line treatments.
I do think that FTY-720 will show efficacy that exceeds that of interferons and glatiramer acetate: it works by keeping T cells from your neurons (and from everywhere else!)
If you do choose to participate then you have my best wishes and sincere admiration.
dignan wrote:Ewizabeth, I was just poking around and don't know if you done this already, but Novartis has a little web screening system to see if you would qualify for the FTY720 trial. Maybe everybody does this for their clinical trials, but I just happened to notice this one.
http://www.novartisclinicaltrials.com/w ... reening.do
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