looking for testimonies

A board to discuss the newly-released drug Tysabri, (formerly known as Antegren) as a treatment for Multiple Sclerosis

looking for testimonies

Postby rene » Thu May 17, 2007 9:13 pm

hello everyone.... i was just wondering if i could get anyone to give me some feedback about tysabri. my wife melissa has been diagnosed with ms for almost 3 years now and has gotten pretty bad within the last 6 months. she cannot move her legs at all and its slowly creeping up her body. her dr. has finally suggested tysabri and we are both concerned. she is willing to do it because she wants to get better. her will is strong and faith is as well. she is currently on copaxone and other meds for her nerves,depression and seizures. has anyone out there taken this drug and what are your results? do you recommend it? we pray that all that are affected by ms have enough strength and will power to overcome your situations. keep fighting everyone!
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Postby lollipop » Tue May 22, 2007 6:58 pm

Rene,
I am glad you are so optimistic about Melissa's situation. That is most of the battle! Hope all is well? I did try Tysabri, but felt that I was getting worse. I gave the drug 5 infusions to do some magic or stabilize me somehow... nothing. I stopped Tysabri and my neuro suggested IV-Ig. That is a biweekly infusion over 5 hours... it didn't work for me. Now I decided to try LDN 2 weeks ago (you can read about it at www.ldn.org) and I am "on hold"and waiting. Haven't gotten worse yet. I have concluded that all the meds don't work with my body, so now I'm back to basics... exercises (what I can), diet, happiness, LDN. Good luck!
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