seeva wrote:Dear members my name is SEEVA from SYDNEY last week I have met my neuro in a m.s clinic in sydney but he is first time using TYSABRI so he is very concern about PML. AND REFUSE TO GIVE me and my other m.s friends the new medication TYSABRI.HE has asked me to go for more blood test and another MRI AND EYE TEST.Then dependent of my test result HE WILL CONSIDER giving me TYSABRI.Inthe mean time the later news the report from BIOGEN INDEC has confirmed futher two cases of PML IN JULY 2008
will our DRS in AUSTRALIA do not use TYSABRI for m.s people. we are all M.S people are waiting for TYSABRI for the past five years. so we all very disopointed. Any members know about the latest news.please reply.
My neuro was involved with the Tysabri trials. I just saw him the day before the new PML cases were announced, and he offered me Tysabri treatment. He told me it is paid for under PBS (i.e. our local government funding for medications, I have no idea what DRS? is). He is very respected here in Sydney (and also overseas I have found) as an MS specialist. His name is Prof Pollard, and he can be found at http://www.bmri.org.au/index.html The address on the site is wrong, as they have recently moved to an office in the building next door. I dont know if the number is correct, as I use the number 02 93510730.seeva wrote:...will our DRS in AUSTRALIA do not use TYSABRI for m.s people. we are all M.S people are waiting for TYSABRI for the past five years. so we all very disopointed. Any members know about the latest news.please reply.
He said they were told that now that they have so many people on Tysabri (over 3,000) there will unfortunately be a lot more cases of PML developing in patients taking Tysabri.
superman wrote:sorry, 2/43 000= 0,0046% is the chance to get a pml
whereas there are about 39,000 fatal crashes in the US each year
39 000/300 millions americans=0,013% chance to get killed while driving.
so before stopping tysabri, sell you car!!!
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