That makes me feel better (even coming from you, JK
). I am torn. I had a vendor in on Friday that I've never dealt with before. He saw my cane and asked and I told him I had MS. His eyes got big and he was like "so does my wife!". Well she's had it for two years and (you can tell this guy pays attention) she is "doing an every three month IV thing". I said all the IV drugs and he just said he would let me know. She's probably taking Rituxan. He is from Dayton, but drives his wife to the OSU MS center and I think they are doing that there. At any rate, you are right in that it has been a difficult time deciding with so many choices right now in new drugs. However, with Rituxan and Campath being off label and in trial, I thought this to be the best route since I can't get into JH right now. We all know that's what I wanted, but I have to stop the bleeding if possible since that's like nine months to a year out, and then I don't even know if I'll get accepted.
The point I was going to make about my visit with my vendor on Friday is that he told me that his wife has already retired and is on full SSDI. He also said you could never even tell she has MS. That sort of pissed me off. She worked for the board of Mental retardation and is thus a government employee. Well her neuro. told her that she should 'de-stress' since working with mentally retarded people can get pretty physically stressful. She got her full SSDI right away and she doesn't even need it since she's been on treatments he told me. I don't know why that pissed me off, you know good for her. I guess since I know that there have been times recently where everything falls apart in a day, you piss your pants and have to go home; where I have thought about it, but understand the uphill battle I will have to fight. I guess I should just go get a gov't job and let them tell me I should retire and get my benefits without a fight. Sheesh, I really wish there weren't so many people on the government tit that just don't want to work and it wouldn't be so hard for people who have paid in since the age of 15 and now really need it. You just have to love entitlement programs where you can just choose to not work and still get them. Oh well, I'm not going to get pissed on football day!! Think happy thoughts.........