tysabri users, how are your relapses?

A board to discuss the newly-released drug Tysabri, (formerly known as Antegren) as a treatment for Multiple Sclerosis

tysabri users, how are your relapses?

Postby dannape » Tue Jan 04, 2005 7:36 pm

I was just wondering, if anyone who has begun taking the tysabri treatments, has been doing with flare ups? have you noticed that they are less frequent, more frequent, or the same?

my best friend starts hers on jan 12th. but she has started another flare up within a week and a half of the last one (that lasted 3 weeks), and she couldn't walk or speak real well, and could not eat (due to the numbess on her left side, that included her face and mouth,and throat, and her flare ups have NEVER been like this, before, she has just been numb for like a week.

so her neurologist has started her on a 3 day treatment of iv stearoids, to try and get her out of this flare up, she is really discouraged, and is looking forward to not having another episode of this proportion while on the tysabri.....

can anyone help in this department?

Peggy
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Postby Arron » Wed Jan 05, 2005 1:54 am

Hi Peggy, what treatment is she currently on, if any?
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Postby dannape » Wed Jan 05, 2005 4:09 am

Hi Arron,

She doesn't start the Tysabri til Jan 12th, and I'm sorry, but I dont' know the exact name of the stearoid that they are giving her now. it's just a 3 day treatment to get her out of this relapse she is in.

She previously was taken the avonex shots, but stopped them almost a year ago,due to the flu like side effects....she took the avonex for almost 2 years, and those symptoms never went away, and she just couldn't take it anymore.
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