aylish wrote:Does anyone know if Tysabri is available in Canada? I did a search on Health Canada but haven't come up with anything...
Arron wrote:Harry, do you know what kind of problems were encountered?
MS is, as you have said on many occasions, a lousy disease. Those suffering from it live in hope that some day some treatment will be available which can alleviate the suffering. Tysabri, on the first year evidence, appeared to show that it was more effective than the CRAB drugs and avoided the need for daily / weekly injections. The number of sufferers who have sought to get on this drug shows the level of desperation.
I am all for freedom of information / the truth etc but this needs to be balanced with the desperation felt by many with this disease. However, almost everyday, you post on Tysabri and the underlying thread seems to be that the trials data was dodgy, rumors that people have died etc etc.
The rumors you hear may turn out to be true, but until this is the case, let those trying this treatment do so without the added fear that all these unproved rumors bring with them.
I know you mean well and I know that your wife has suffered from MS for many years - but I'm not sure you understand the impact of some of your posts
Gomori, who did some blind patient testing during the study, said he is hopeful about the drug but is waiting to see the full report before jumping for joy. He expects the full report in the spring.
MeadowStream wrote:Despite the overwhelming evidence from clinical trials and anecdotes from MS sufferers, you continue to use innuendo to attempt to cast a shadow over Tysabri. You are relentless and one must wonder why...
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