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PostPosted: Sun Feb 13, 2005 6:42 am 
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Joined: Thu Jan 13, 2005 4:00 pm
Posts: 30
Location: Pennsylvania
I have received 2 doses of Tysbri at the hospital in the medical short stay unit. It isn't bad, but it is a long drive to and from. My doctor said I could have the infusion anywhere I liked, and the nurses in the office have been working on trying to set up home infusions for those who want that. Which I really do. A nurse would come in to the home, start the IV, administer the drug and stay for the 1 hour monitoring afterward. I think the one on one at home is even better than what I have been getting at the hospital. My doctor said that since I have not had any problems with the first 2 doses, I will be fine. The problem is...I can't get it set up. The home health care agencies are glad to do it, but the problem seems to be with getting the drug from the company who the insurance company pays for. Has anyone looked into this or had any success. I would appreciate any help with this...it's getting frustrating. Thanks ;)


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