rasnet6 wrote:Its always worth remembering to proceed with caution with off label drugs. Their safety profile will have been established with healthy volunteers as well as the group of people the drug was originally targetted for (which will probably not include people with MS)
I suppose doctors are nervous of adverse effects with these treatments and thats why they are so difficult to get hold of! Mine wont even let me tell him about them, let alone consider prescribing them.. you are too young, you have life ahead of you... they may make you infertile.. we dont know the long term risks blargh blargh blargh blargh
I dont have children, because im too damn tired to look after them., so it wont hurt to be on a different drug, but what if it makes me better and i feel like i want children.. i feel like i am going around in circles
feesher wrote:Our Neuro, when trying to tell my wife to get on Tysabri, more or less said that we now know that the interferons weren't much use.
If this is indeed what your neurologist said, then I believe that he may have misinterpreted the recent events regarding Tysabri. Interferon-B is fine on its own. The problem was combining it with Tysabri.
Why complain about something being "rushed to market" when you don't have to take it?
Rare side effects are COMMONLY missed in the FDA clinical trial process. We just notice this one, because it's a drug for a condition we're involved with.
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