Hi, I’ve been lurking around the site for a while now and there’s some excellent information here. I’m 23 and was diagnosed with MS 5 years ago. After a bit of a rough patch about 18 months ago I think I have finally found my feet again (in a manner of speaking
) and got things under control.
I’ve taken avonex in the past which only seemed to make things worse unfortunately. I’ve been on LDN and used diet and supplements for about a year now which seems to have stabilised things. However, I’m not easily pleased so just stabilising things isn’t good enough for me! For this reason, and after it was suggested to me, I decided to try the anti chlamydia pneumoniae antibiotic regimen. I’ve been on them just a month now and things are looking promising as my legs seem to be fractionally stronger already so I am cautiously optimistic.
I wasn’t sure whether to post in this forum or not as it seems very quiet but then I thought that it’s important for us younguns to hear the experience of others in the same situation. I think it’s brilliant that this forum is here and it’s just a shame that it’s not used more.
Although I feel in control (well as much as I can be) of my situation now I can still remember the disbelief and the confusion I felt when I was first diagnosed. I know it’s the same for anybody any age when you’re hit with a diagnosis of MS but I can remember how isolated and lonely I felt as nobody seemed to understand. My family have always been very supportive but they have never been great at dealing with the emotional side of things. I find it very difficult to talk to friends about my MS as it’s hard for them to understand what I’m going through because they’ve never had to deal with anything like this. I’ve lost a lot of so-called friends because they were uncomfortable with my situation. Also I sometimes found it difficult to join in with some MS communities because I felt so much younger than everyone else.
Having said all that, I have now found some wonderful friends who have helped me more than they know. Age isn’t an issue when you find good friends and I certainly don’t want to belittle what anyone else goes through with MS, but younger people with it probably do have slightly different issues and concerns. This is why this forum was such an excellent idea. It does make the whole situation easier to deal with when you realise that you’re not alone and there are others who understand what you’re going through.
If I’m honest then the last year or two have been quite hard but I think I’ve moved past all that now, I’m still here and I’m very hopeful for the future. MS may give us physical disabilities but it can’t take away our hopes and dreams.