New here, its a long journey to DX

This is the place to ask questions if you have symptoms that suggest MS, but aren't yet diagnosed.

New here, its a long journey to DX

Postby MrsSHB » Wed Jun 13, 2012 8:56 am

I have been dealing with symptoms for over a decade with no DX. I've had two MRI's with no lesions showing, I had actually stopped seeing my doctor as I started to feel all the issues were in my head. 6 years have gone by since Ive even thought of MS, I have tended to put symptoms off to getting older and falling apart lol.

A regular round of blood work and a urine test have put me back on the path of specialist and my doctor asking how my MS symptoms have been?? So here I am after all these years facing all the issues I wrote off as just age related and all in my head.

Off to a urologist for issues I didnt even know I had, and having issues with exteme fatigue, joint pain, and tingling in my leg as well as balance issues......

I guess time will tell where this road takes me, here's hoping to having some answers in the future other than your test results are fine/normal..... 8)
Mrs Sammy B
User avatar
MrsSHB
Newbie
 
Posts: 3
Joined: Wed Jun 06, 2012 7:50 am

Advertisement

Re: New here, its a long journey to DX

Postby jimmylegs » Wed Jun 13, 2012 5:50 pm

hey there! welcome :) we have lots of answers above and beyond 'normal' results - if you have a glance at my signature links there's an intro explanation why :)
again, welcome to TiMS
jimmylegs
Volunteer Moderator
 
Posts: 8955
Joined: Sat Mar 11, 2006 4:00 pm

Re: New here, its a long journey to DX

Postby jimmylegs » Wed Jun 13, 2012 5:51 pm

specifically, this one: post168661.html#p168661
jimmylegs
Volunteer Moderator
 
Posts: 8955
Joined: Sat Mar 11, 2006 4:00 pm

Re: New here, its a long journey to DX

Postby want2bike » Thu Jun 14, 2012 1:13 pm

You see similiar problelms in lyme disease and mercury poisoning. If you have a lot of dental work might want to see a mercury free dentist and have you teeth checked out. They have instruments which can check the amount of mercury being released in your mouth. If that is your problem there are detoxification programs which allow your body to detoxify itself.

http://www.dentalwellness4u.com/browse/guide.html
want2bike
Family Elder
 
Posts: 742
Joined: Thu Sep 15, 2011 9:15 am

Re: New here, its a long journey to DX

Postby MrsSHB » Tue Jul 31, 2012 7:46 am

"If you have a lot of dental work might want to see a mercury free dentist"

Thank you for all the info, I dont think mecury poisoning would be an issue as I am beyond lucky to have been blessed with great teeth and at my lovely age I dont have any fillings :-)

I have thought about Lymes disease except that I have had symptoms now for over a decade, I was born with a heart defect and if I understand what I have read about Lymes disease I would probably be dead by now if it was Lymes disease.

My GP has booked me for another MRI in the fall and has forwarded my previous MRI's onto a new neurologist for review. I am at a loss as to what is going on, I eat a healthy diet which contains low to no carbs, very little red meat, high in fruits and vegetables as well as fish and chicken. I try not to let whatever is going on affect my day or my outlook, it is what it is and life must go on. I watch what I do depending on how I feel that day, since balance is an issue I have been banned by my family from using any lawn care equipment or power tools (had a minor accident a few years ago).

I work out but never too extremes, I am starting Yoga again to help my mind and body stay in shape.......I am not sure what the final DX will be but I hope to have some answers of what it is not before Christmas, until then I will keep reading and try to stay positive in my quest for an answer.
Mrs Sammy B
User avatar
MrsSHB
Newbie
 
Posts: 3
Joined: Wed Jun 06, 2012 7:50 am

Re: New here, its a long journey to DX

Postby jimmylegs » Tue Jul 31, 2012 8:09 am

hey there, perhaps you could try looking at the inflammation balance of your diet, omega-6 to omega-3 ratio for example, and whether your food choices are all topped up wrt ms-preventative nutrition. it would be a pretty straightforward analysis, just a little time consuming.
zinc is one key nutrient to look at. how's your diet for zinc-rich foods? oysters, crab, venison, beef, lamb, these are some of the foods that pack the biggest bio-available zinc punch.
also based on the symptoms you mention i'm suspicious about your magnesium status. since i was diagnosed i've had to make a big change in the number of times a week that big servings of chard and spinach appear on my plate!

zinc
http://www.whfoods.com/genpage.php?tnam ... oodsources
http://nutritiondata.self.com/foods-000 ... 00000.html

magnesium
http://www.whfoods.com/genpage.php?tnam ... oodsources
http://nutritiondata.self.com/foods-000 ... 00000.html
jimmylegs
Volunteer Moderator
 
Posts: 8955
Joined: Sat Mar 11, 2006 4:00 pm

Re: New here, its a long journey to DX

Postby MrsSHB » Tue Jul 31, 2012 10:41 am

I have booked an appointment with a doctor to request blood work drawn to run my hormone levels on Friday, I am only 43 but I am thinking part of my problems might be related to hormone levels changing. After reading other posts on here I would like my D, Magnesium and I guess my Zinc levels looked at as well.....
Mrs Sammy B
User avatar
MrsSHB
Newbie
 
Posts: 3
Joined: Wed Jun 06, 2012 7:50 am

Re: New here, its a long journey to DX

Postby jimmylegs » Tue Jul 31, 2012 12:21 pm

i hate this kind of animal study, but since it exists..

connecting falling est/progesterone levels and nutrient status:

Zinc deficiency and supplementation in ovariectomized rats: their effect on serum estrogen and progesterone levels and their relation to calcium and phosphorus.
http://www.ncbi.nlm.nih.gov/pubmed/19339224
"Group 1: Control, Group 2: Ovariectomized (OVX) control. Group 3: OVX-Zinc-supplemented. Group 4: OVX-Zinc-deficient"
"Group 1 had the highest estrogen levels (p<0.05). Estrogen levels in group 3 were higher than those in groups 2 and 4 (p<0.05). The lowest estrogen levels were found in group 4 (p<0.05). Progesterone levels were higher in group 1 than in groups 2, 3 and 4 and the same parameter in group 3 was higher than those in groups 2 and 4."
jimmylegs
Volunteer Moderator
 
Posts: 8955
Joined: Sat Mar 11, 2006 4:00 pm

Re: New here, its a long journey to DX

Postby want2bike » Tue Jul 31, 2012 1:47 pm

If you can't find the problem might want to check out a holistic doctor.

http://www.youtube.com/watch?v=ZAhu6oa_ ... ure=relmfu
want2bike
Family Elder
 
Posts: 742
Joined: Thu Sep 15, 2011 9:15 am


Return to Undiagnosed

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service