Not (yet) diagnosed, but we're still searching.

This is the place to ask questions if you have symptoms that suggest MS, but aren't yet diagnosed.

Re: Not (yet) diagnosed, but we're still searching.

Postby friendgirl » Sun Sep 23, 2012 5:35 am

more complaining about symptoms-
sleeping 16-20 hours at a time
brain buzzing (literally, an electrical feeling that my brain is buzzing.)
bowel accidents
eyes excessively watering
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Re: Not (yet) diagnosed, but we're still searching.

Postby friendgirl » Sun Sep 23, 2012 8:13 am

the electric/buzzing feeling in my head is bad, and i contemplated going to the hospital but i don't think i'm going to anymore. going to try and sleep, and then clean my house.
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Re: Not (yet) diagnosed, but we're still searching.

Postby friendgirl » Sun Sep 23, 2012 10:07 am

sorry that i use ths page mostly to whine. positive note- i cleaned most of my house, yayyyy i am going to go to bed after having some hot cocoa.
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Re: Not (yet) diagnosed, but we're still searching.

Postby jimmylegs » Sun Sep 23, 2012 2:35 pm

have a nice rest :)
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Re: Not (yet) diagnosed, but we're still searching.

Postby jimmylegs » Sun Sep 23, 2012 2:52 pm

hmm i had posted something earlier today but it's gone. must have timed out. anyway i was hoping to clarify if you mean you have diarrhea.. zinc deficiency can cause that and what with the cold and so on, i thought you might want a little more reading.. if you eat wheat, dairy, sugar, or high-phytate foods often, it can deplete zinc. also modern diets contain fewer zinc-rich foods so societally our levels are down.

Zinc supplementation in the management of diarrhoea
http://www.who.int/elena/titles/bbc/zinc_diarrhoea/en/
Zinc deficiency is associated with an increased risk of gastrointestinal infections, adverse effects on the structure and function of the gastrointestinal tract, and impaired immune function21, 27–30


21 Shankar AH, Prasad AS. Zinc and immune function: the biological basis of altered resistance to infection. American Journal of Clinical Nutrition, 1998
27 Lukacik M, Thomas RL, Aranda JV. A meta-analysis of the effects of oral zinc in the treatment of acute and persistent diarrhea. Pediatrics, 2008
28 Gebhard RL et al. The effect of severe zinc deficiency on activity of intestinal disaccharidases and 3-hydroxy-3-methylglutaryl coenzyme A reductase in the rat. Journal of Nutrition, 1983
29 Bhan MK, Bhandari N. The role of zinc and vitamin A in persistent diarrhea among infants and young children. Journal of Pediatric Gastroenterology and Nutrition, 1998
30 Prasad AS. Discovery of human zinc deficiency and studies in an experimental human model. American Journal of Clinical Nutrition, 1991

also:
Are changes in food consumption patterns associated with lower biochemical zinc status among women from Dunedin, New Zealand?
full text URL: http://journals.cambridge.org/download. ... 49a2a202a6
(short answer, YES)
Reductions in red meat and increases in cereals in the diet may compromise the intake and bioavailability of Zn. In this cross-sectional study of 330 premenopausal New Zealand women aged 18--40 years, we have assessed the inter-relationships among dietary intakes (via computer-administered food-frequency questionnaire), biochemical Zn status, and anthropometric indices, and compared our results with earlier data. Fasting serum (12.00 (sd 1.36) micromol/l) and hair Zn (2.71 (sd 0.36) micromol/g) were lower than those for young Dunedin, New Zealand, women in 1973 (non-fasting serum Zn 18.6 (sd 4.6) micromol/l, hair Zn 2.99 (sd 0.35) micromol/g). Further, our mean serum Zn was at the 25th percentile of the US National Health and Nutrition Examination Survey (NHANES) (1976--1980) reference sample for women aged 20--44 years. Meat-poultry-fish contributed only 28 % total Zn in the present study, a level comparable with that from cereals-nuts-legumes (27 %), compared to about 40 % in 1989. Significant negative correlations existed between serum Zn and dietary [phytate]:[Zn] molar ratios (r -0.163, 35 % had diets with [phytate]:[Zn] >15, a level said to compromise Zn status...
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Re: Not (yet) diagnosed, but we're still searching.

Postby friendgirl » Mon Sep 24, 2012 1:32 pm

oooo.
internet went off in the house, so i now have to walk everywhere. praying for snow, rain, or cold weather. was stumbling about in the heat before. are normal people able to stand the heat without falling over?
praying for snow, optimally, or rain, or just cooled off weather.
applying for a job that sounds perfect for me. hoping this all works out.
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Re: Not (yet) diagnosed, but we're still searching.

Postby friendgirl » Mon Sep 24, 2012 2:48 pm

brain buzzing, balance problems, dizziness, leg freezing, feel. like. death.
doctor's appointment needs to hurry up and get here.
i am determined not to go to the hospital just because i don't feel good but this is really dramatically bad. if my mom was here shed say i need to toughen the hell up, so that's what i'm going to try to do.
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Re: Not (yet) diagnosed, but we're still searching.

Postby friendgirl » Mon Oct 01, 2012 10:47 am

small update: went to the hospital for tightness in chest and pain.
they couldn't find anything, let me go home.
now i'm just waiting for my appt tomorrow.
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Re: Not (yet) diagnosed, but we're still searching.

Postby friendgirl » Mon Oct 01, 2012 12:44 pm

got hit with some exhaustion, some pretty damn powerful exhaustion. now i'm trying not to just fall asleep here seeing as i'm not at home yet.
//cannot wait to get a diagnosis for WHATEVER this is, instead of more tests, more tests, let's see if you feel better in two weeks, more tests, more tests, more tests, more tests, HEY DON'T POOR PEOPLE HAVE A BUNCH OF MONEY ORE TESTS AGAIN//
/vent over
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Re: Not (yet) diagnosed, but we're still searching.

Postby jimmylegs » Mon Oct 01, 2012 1:18 pm

checking in re:
anyway i was hoping to clarify if you mean you have diarrhea
above

re chest pain/tightness, exhaustion.. possibly magnesium links... there's lots of good info out there re mag options (dietary, topical, supplemental).

hope that job you mentioned pans out.
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Re: Not (yet) diagnosed, but we're still searching.

Postby friendgirl » Mon Oct 01, 2012 1:27 pm

i'll check out magnesium foods. it'd be great to feel better. thank you!
i just found out that tomorrow i might be able to get a wheelchair on loan for free! makes the diagnostic limbo wait not as bad.
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Re: Not (yet) diagnosed, but we're still searching.

Postby jimmylegs » Mon Oct 01, 2012 3:25 pm

k well watch out when it comes to magnesium supplements. b/c if you do have diarrhea.... supplemental form of mag is of critical importance...
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Re: Not (yet) diagnosed, but we're still searching.

Postby friendgirl » Mon Oct 01, 2012 4:17 pm

well there hasn't been any diarrhea, i just have to go 5-10x/day and sometimes i have accidents.
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Re: Not (yet) diagnosed, but we're still searching.

Postby bartman » Tue Oct 02, 2012 2:48 pm

it sounds like you have babesia, bartonella and borrelia. read dr. burrascano's guidelines and find a lyme doctor!
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Re: Not (yet) diagnosed, but we're still searching.

Postby friendgirl » Tue Oct 02, 2012 4:12 pm

the doctor's appointment today was confusing.
oscillated a lot between 'you're clearly faking it' (evoked potential and those physical tests showed damage and she thinks i'm faking it on purpose. i promise i'm not.) and 'holy shit, that's serious.'
as i was wakling out of the appointment (in tears, she did a fair bit of harrassment) she called me back in bc she had just looked at my spinal x-ray and it turns out, part of my lower spine is flat out degenerating. how wonderful. (and i'm not faking it.)
i have a ct scan on thursday AM.
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