AussieRose wrote:An MRI came back "clean" for MS which I was extremely happy with. The problem is, the symptoms are still there and I have new ones. I have a weird sensation in the middle of my back which I'd had for some time but wrote-off as a temporary annoying thing but it's there many times a day. It's a strange buzzy, kinda tickly feeling that starts in the centre and then spreads outwards. It happens most times when I step into a hot shower. And the pins and needles and burning is there in some capacity every day.
I don't know what I want really. Obviously I want no symptoms and to not be diagnosed with anything. But I want answers and I want to know I'm not going crazy.
Welcome to ThisIsMS, AussieRose. Very often, it is not easy or quick to diagnose MS. Before expensive tests even existed to diagnose MS, doctors used to diagnose it on the basis of symptoms and if they temporarily worsened when the patient sat in a hot bath for a while. I had "normal" test results initially (lesions were seen on my FOURTH MRI and the diagnosis was made then). Many people with the diagnosis of MS have NO lesions on their MRIs; there are people, who had no MS symptoms during their lifetimes, who are found to have many lesions on autopsy – it is my opinion that lesions have no effect on this disease, they are simply scars from any number of causes.
You are "not going crazy." We welcome your questions and your contributions to this website. IF you do have MS, you have found many supportive friends at this site. We come from diverse experiences and hold diverse ideas, and we are willing to share all of these, if asked.
My hypothesis: excess insulin (hyperinsulinemia) plays a major role in MS, as developed in my initial post: http://www.thisisms.com/forum/general-discussion-f1/topic1878.html "Insulin – Could This Be the Key?"