Hello to all,
I have been having what I would call total body pain attacks for the past 3-4 years. I do have a couple of disorder that have been diagnosed, one being Ehlers-Danlos Hypermobility type that is a collagen disorder. However, the symptoms I am having do not fit with current diagnosed disorders. The most recent episode was yesterday. They start with a few days or weeks of stiffness in my neck and shoulders ( I do have mild cervical disc degeneration) then I woke up with a headache yesterday. I have a history of migraines and carry imetrex with me. The pain of the HA was in the back of my head and the top. I had been have pricking and tingling sensations down the left side of my head and shoulders for a few days before too. Headache increased to migraine level with nausea and I took imitrex with no relief. It did not even feel like a migraine but I did have photophobia and visual disturbances (still have this today). It progressed to a burning pain down the length of my spine and spasms in various muscles. I had to take my strongest narcotics and lorazepam to get any relief. Today I am left with blurry vision and a vise like feeling around my torso. My neck is still stiff. I will have these "attacks" irregularly but usually every 3-6 months. Yesterday I thought I was having a stroke but was too ill and too cognitively impaired to realize I should have gone to the hospital. Besides I have little faith in the docs around here. I am really, really scared and have no idea what this could be except maybe MS. Please, please help me. I have an appointment in September to see my opthamologist. I don't know who to see about these attacks.