I have an appointment (if you can call it that, first come first serve clinic) tomorrow to see a doctor. I have a number of symptoms, and found out about ms through google (where else?) as well as your board. I need friendly suggestions and non-professional opinions about what is going on. I welcome any and all suggestions.
I was diagnosed with:
1.migraine headaches around 2005 and raynauds sydrome
2.seizure disorder in 2010. (absence seizure with speech disturbance and facial weakness. It looks a heck of a lot like bell's palsy, my gp said, but neurologist said my gp was full of it, and wrong.
3.arthritis in 2011
My main complaint tonight, and for the last several weeks, is that I am in excruciating pain. If I sit still for a while and then get up, I am locked. It takes a while to unlock and get bpast the horrible pain, then I am okay until I move around TOO much, then I am in terrible pain again, and lay down, hoping for sleep, and when it comes I am back to square one when I wake up.
No longer is it just the joints hurting, but the muscles are twitchy after moving, my grip sucks, I have a right hand tremor and right foot keeps dragging, and I can't walk like I used to without paying attention to wher I am going, because I am going to walk over to the right unless I am concentrating. I have fallen in the tub twice this month.
My family complains that I do not make sense when I talk, but I think I make perfect sense. It is very frustrating, because I will have a well ordered thought, and try to communicate it via speech, and it sometimes comes out either as soft mumbling or disconnected. I noticed this does not happen when I write. I am not as good at writing as I used to be because of concentration and forgetting what I was going to say, but it's still a lot better than when I talk.
I find when I go to the doctor they treat everything separate, and it's getting to the point to where I have all of these illnesses that I am told are unrelated, but I have so many that I cannot handle it, and am afraid to tell the doctor more than I just told all of you, for fear of getting shoved off.
So if I would tell the doctor everything that is weird or off, my list would look like this:
1.I hurt with low grade pain (2-4 on the pain scale, which I do not understand) constantly in my fingers, toes, c-spin, and hips.
2. The only place (musculoskelotal system) I do NOT have pain is my ankles, mid and lower back, elbows and upper arms, wrists
3. The low volume pain is pretty much symmetrical
4.the high volume pain is in my right hip, right shoulder, both knees, and big toe joint (sounds stupid, but excruciating when walking, feels like I broke my foot whenever it happens)
5. I have dead nerve places on my big toes. no sensation on the skin whatsoever
6. My right foot inexplicably drags after I walk for any amount of time. I look drunk when I walk.
8. Vertigo (like the room shifted really quick)
9. Itchy skin, everywhere.
10. incontinence (this is new in the last couple of months) I think I am finished, but have significant leakage after standing up. Or if I wait too long to go, I am done for.
11. Vision went from 20/20 in 2009, to needing bifocals in 2010.
12. Slightly depressed, but more frustrated than anything. I have tons of work projects to do, and begin mid semester in October. I hurt when sitting for any length of time, too exhausted to stand for long periods. I get painfully stiff when I do anything for longer than 10 minutes or so .
13. I am losing my grip and fine motor skills. Jars, holding a brush or pen are hard.
14.shooting pains in my eyes in the back. like the pain is in the eyeball, coming from the back and shooting forward, like a quick stab.
15. sudden hearing loss that comes and goes. I have a high -pitched ring, then the hearing disappears as neatly as if a volume knob were turned slowly to zero, then the reverse happens and all is well.
16.I can no longer turn my head fully to the right, but have to turn my upper body as a unit to see over my shoulder or behind me.
17. needle stabs in my legs, feet shoulders and hands.
18. I am typing wrong on the keyboard a lot, so forgive the lack of proper caps and all. I am having to go back and correct so much these days that it is a lot of work, and I need to write this now, or I might never do it.
Okay, enough of that. I am afraid that if I go and tell the doctor all of this, that he/she will either dismiss me, write me off as crazy, or even worse, give me medicine or do tests that I do not need.
I don't know if I have ms or not. I know that life is becoming miserable because of this. The absence seizures and the headaches do not bother me anywhere as much as losing control of my body and having miserable pain.
I am a bit worried about being honest on a forum, but I am taking a chance that you all can see a pattern, or else be able to suggest something else.
Thank you for reading this, and have a good day!