by CaliReader » Mon Oct 14, 2013 12:53 pm
You're asking the right questions. I don't know enough about Lyme to know, but I would follow up that path as well.
You have to meet the MacDonald criteria before you can be diagnosed with ms. Neurologists can be misleading when they talk to someone who might have ms but doesn't yet tick all the boxes for a diagnosis.
Perhaps he/she thinks you have early ms, or 'benign' ms and wants to encourage you to get on with your life while you still don't have motor control issues. Perhaps he/she is busy and not paying attention. Regardless, you could have used an acknowledgment that you don't feel well in wierd, strange, uncomfortable ways. Also pain can be treated. I only take pain meds at night because I want to be more awake during the day but that's my choice. The bed time pain drugs are a life and sanity saver for me.
If it were me back before I was diagnosed, I would probably have returned in 6 months to revisit the issue. Today, less insecure about my experience and symptoms and more comfortable with the medical system, I would get a second opinion from a different neuro.
You didn't say which country you're from. Some places offer early treatment for possible MS, others require full blown diagnosis with MacDonald criteria before drugs are offered. The kindest interpretation of what your neuro did is that he/she sees possible ms, must wait for more lesions/ symptoms to develop to diagnose, and doesn't want you to worry in the meantime.