TRae wrote:Hello all,
New to this board, new to the potential of MS/some other neurological issue becoming prominent in my life. New to the deep fear this is causing. 32 yr old Female, otherwise "healthy." Similar to many posts I've read here, I have started exhibiting nearly ALL symptoms I can find listed here, episodes becoming worse over the past two years. Regular/primary Dr. thought MS, MRI shows clear (which I can also see in many posts that clear MRIs can also be common even with disease onset). Referred to Neuro, and was blown off (rather rudely) as ANXIETY. (when I am one of the most UN-anxious people alive). I see being blown off with 'anxiety" as a cause is also common. Since medical professionals have nothing more to offer me at this point, I need practical advice. Suggestions for diet to reduce potential of more flare ups? We already eat extremely well, no trans fats, no artificial sweeteners, gluten avoidant (although not 100% eliminated). Also exercise advice? I am very active/biking/running. Do activities, when I can actually move to participate in them, make things worse? Better? What steps should I be taking, under the knowledge that there IS something still deeply wrong even though I am not being taken seriously by the medical professionals yet? I'm coming off of a debilitating and terrifying 10 days of symptoms...now lessening but not gone. Thoughts from the board? I humbly welcome any advice or opinions that you have.
Welcome to ThisIsMS, TRae. We are here to help you in any way that we can. I think that all of us can understand the fear you are experiencing; take a deep breath. You know your body best. If you think there is a physical problem, there probably is.
You say, "I need practical advice;" here are my suggestions:
Compare your initial neuro exam with the following suggestions from the University of Chicago:http://peripheralneuropathycenter.uchic ... #bloodtest
If none of the blood tests listed were ordered by your neurologist, ask your GP to perform some or all of them:
Blood tests are commonly employed to check for vitamin deficiencies, toxic elements and evidence of an abnormal immune response.
Depending on your individual situation, your doctor may request certain laboratory tests to identify potentially treatable causes for neuropathy. These include tests for:
Vitamin B12 and folate levels (Zinc, magnesium, vitamin D, and copper are also recommended by jimmylegs here at TIMS.)
Thyroid, liver and kidney functions (especially thyroid hormones testing is recommended by Kathryn Simpkins in her book, The MS Solution)
Oral glucose tolerance test (In addition, I suggest a "fasting blood insulin test" – NOT the same as blood sugar/glucose testing.)
Antibodies to nerve components (e.g., anti-MAG antibody)
Antibodies related to celiac disease (Gluten sensitivity is linked to neurological symptoms. A mannitol-lactulose test for Intestinal Permeability could also be helpful.)
Hepatitis C and B
As for "suggestions for diet to reduce potential of more flareups," I direct you to our Diet forum [Dr. Terry Wahls has seen dramatic improvement in her MS symptoms with diet and exercise (http://www.TerryWahls.com
)]. You do seem to have an excellent diet – I can only guess that you are sensitive to ANY gluten, which increases your blood sugar level and, in turn, increases your insulin level. (The optimal fasting blood insulin level is 3 UU/ML or lower.) If your insulin level is elevated, this is probably causing insulin resistance which may be the source of your symptoms.
In part two of the 7-part presentation on Celiac by Gary Kaplan, D.O., the atypical or extraintestinal form with its neurological manifestations is described:http://www.youtube.com/watch?v=chjDo_pL ... qHjwF7ktRo
I have no medical background. These are my unique suspicions or opinions about MS, not accepted by any "expert" to my knowledge.
My hypothesis: excess insulin (hyperinsulinemia) plays a major role in MS, as developed in my initial post: http://www.thisisms.com/forum/general-discussion-f1/topic1878.html "Insulin – Could This Be the Key?"