cardarlinow wrote:First off.. I have a very strong family presence of MS. One family member has already passed from old age but lived with MS all her life. I have 3 others on my mothers side and one on my fathers side. About 6 months ago I noticed that both of my big toes are numb. Its not completely numb throughout the whole toe but more of a sensory numbness on the skin along the outside and into the middle. I recently went to the doctor to have it checked out. We did an xray because I had some bumps on my foot that showed that I had beginning Osteoarthritis in both feet. We also did an EMG which came back normal. Prior to all of this, roughly three years ago, I went to my eye doctor with a few visual disturbances about a year after my sons birth. After a through exam, my eye doctor said that the visual disturbances were actually ocular migraines and nothing to worry about. However, one of my optic nerves was thicker than the other. It didn't cause me any problems so we just monitored it for a year. I went back every two months to measure a freckle on my cornea and to check my optic nerve. Neither of which ever changed. At that time I did also have an MRI with contrast of the brain to check for any signs of a tumor ( something that could cause only one of the optic nerves to be swollen) or anything that could suggest pseudo tumor cerebri. The MRI at that point was normal.
Now, fast forward, back to my numb toes and my doctor visit. I went back for a follow up to discuss my EMG results. The doctor who did the EMG test said he was going to recommend an MRI of my spine to check the L5 disk. But, when I finally got to see my GP they mentioned nothing of it and said that they didn't feel anything would show up in an MRI at this point. That MS doesn't typically present itself in numb toes ( peripheral neuropathy which is what my diagnosis ended up being, however, I thought the EMG doctor told me it WASNT P.N. So I'm not so sure if that was a mixup) I had blood work up done and was given a handout on what to look out for with MS. I was instructed to go home and wait for more symptoms.
Things happen very subtly for me. I would assume that if it was a big issue I'd notice it and be very bothered by it. So I never know if I should ignore something or keep track of it. I'm not exactly comfortable with the "wait and see" approach. So I wanted to ask some advice on some of the symptoms that I know I do have.
Recently I went to Southeast Asia for a couple months. While I was there I had quite a few dizzy spells. Since coming back home (Midwest-U.S.) I have also had a few dizzy spells but nothing as frequent or dramatic. For instance, Sometimes if I lean down to pick something up like a tub of yogurt out of a display case at the grocery store, I'll lose my balance for a quick second and almost fall over. But this happens so fast that I don't think anything of it. I don't stay dizzy for more than a second or two at a time. I have not had a dizzy spell in about two weeks time now. I did find out through blood tests that my iron was low. So I did start supplements and it seemed that it went away at that time. However, I also have GI problems and started a new diet (vegan plus no sugar, low carb) per my G.I. doc and stopped the iron supplements for the time being and still have not had any problems. I do not believe that my toe numbness is caused by low iron as it wasn't significantly low. Only an 11 and it seems like the toe numbness is coming from a certain spot (possibly on my spine, I'm assuming around L5 because the EMG doc mentioned that spot).
I have sporadic tingling. It will hit a spot on the top of my foot for a second or two.. then five minutes later it will hit my arm for a second or two, etc.. as it moves around my body. I can go a couple hours without feeling a tingle and then I can have several in different spots within the hour. But it isn't constant. My feet also are always cold but never change colors. I have IBS ( thats what the special diet is supposed to treat) and was recently diagnosed with GERD. Not sure if the G.I. problems are related to MS. Just throwing that out there. I also have a lot of sleep problems. I went to see a sleep doctor last year for some symptoms that were troubling me. The doc mentioned that it sounded a lot like narcolepsy but was hesitant to give me a diagosis unless she was 100 percent sure and that could take quite some time to figure out. I did two sleep studies and was told I had sleep apnea but it was still a big question mark as my sleeping is just weird, I guess. Instead of giving me a cpap machine they gave me an autopap because they couldnt find a set pressure that would keep me breathing. I also, only stopped breathing during R.E.M. sleep. Since then, my sleep doctor has retired ( she was only 33... must be nice!) So I will need to see a new sleep doctor and probably start that process all over again to figure out whats going on.
I've also had a few episodes of muscle weakness. It's actually like a sharp pain in a muscle then I feel like it feels funny to move. Kind of like, if you had hit your funny bone. I can move it.. it just will feel different or a little heavy. Again, it doesn't last and usually is gone within a few seconds or a minute or two.
I was thinking about seeing a Chiropractor for my toe numbness. To see if there is anything that they can do that might help alleviate it. Maybe also a foot doctor? I am not sure if I should see a Neuro based on these symptoms I listed since my doctor told me to wait. I just don't know if what I described, warrants a trip to a Neurologist.
cardarlinow wrote:I have been on a vegan, no gluten, no sugar diet for a week now. Last night I was feeling more hungry and more tempted than usual so I ate some rice with curried vegetables. I have not had any white carbs all week long. No gluten free pastas or breads either. No white potatoes.. etc.. All day today, I just felt a little off. I didn't figure it out until just now what is going on. I ate rice with leftovers for breakfast and lunch. Than, I went out to dinner at an asian restaurant where I had more rice. I've been dealing with nerve pain since 2pm in my right foot which is shooting up to my knee. It has been on going about every 1-2 minutes since then and still is continuing. I decided to test my blood sugar and it was at 133. Which I believe is high since its 3 hours since eating. So, I've emailed my doctor again to let them know this since my non fasting blood glucose was deemed "normal" when I had the Metabolic panel done a few weeks back.
I'm not sure if I understand correctly if you are implying that the insulin is tied to MS? Or, it is either insulin related or MS related? I was a little confused on that. But I definitely now am convinced that there is an insulin problem going on. For awhile it has always been "normal" I've also always struggled with low blood sugar which is why I already have an insulin monitor at home. I am overweight ( well probably considered obese medically) with a vmi of 35. So this is really not surprising.
Suspect nutrients for MS patients include but are not limited to:
vitamin b complex (all of them, particularly b12)
essential polyunsaturated fatty acids
personally i would prioritize testing for zinc, magnesium, d3 and b12 first, the rest later. to help prioritize 'later' items, it's useful to look at interactions, eg getting a handle on how your zinc, ferritin and copper levels are doing.
SERUM tests (eg serum zinc, serum magnesium, serum 25(OH)vitD3, serum vit b12) for these items (serum lipid profile or serum PUFA for the last one) are a good first step and are most useful for comparison to similar measurements taken in various research studies. for several of the nutrients listed above, I have done some of the work of sifting through the available science on consistently healthy levels, to come up with some levels that look like reasonable targets. more on that below.
cardarlinow wrote:I emailed my doctor to inform them of my ( in my opinion) elevated sugar levels. Also asking for info on my other nutrients that we tested at the lab. A few weeks ago when we did the blood work, I heard from my doctor that my iron was low (11) and that my white blood count was high. Shortly after having my blood drawn I did come down with a "normal, going around town" bug. So I assumed that the wbc was high because of that. She wrote me a slip to redo my wbc. I waited until I felt like I was feeling better. I did redo it yesterday so hopefully it has come down now. But I was reading last night about an elevated wbc and autoimmune diseases. This time the wbc is with diff so hopefully we can figure out what that is all about. My doctor responded to my email to inform me that I do not need to worry about my sugar. That I do not have diabetes and that this is not the cause of the problem. I still think that my sugar levels are important. I'm not sure if I mentioned it before but I've always struggled with hypoglycemia.. so for it to "pre-diabetes" high, I think is personally important. She also mentioned that my vitamin B12 was in fact low "By neurology standards" meaning below the recommended 500 that most neurologists like to see it around.
My neuropathy ( I'm assuming because this is a new thing for me) has been bad the last few days. I've been dealing with a prick or shock feeling that starts in my foot and shoots up to my knee. It has been going on every 1-2 minutes for a course of 15 hours or so. I was avoiding my iron supplement ( probably wrong thing to do) all last week as I was starting the new vegan diet with sugar, and gluten restrictions. I was hoping that removing the irritating parts of my diet would help me absorb more iron. I was also worried about constipation as I deal with that on an every day basis and I'm worried about becoming dependant on laxatives. But, yesterday I started taking the iron again with a vitamin C supplement. It seems that the shock in my leg has gone away. I'm not sure if its coincidence or not. So we will see as I continue with the iron.
All of this talk about insulin and the affect on MS is quite interesting. With my first pregnancy, I gained quite a bit of weight without really changing a lot of my eating habits. My eating habits were somewhat poor but I had always been at a maintence level. My first son was early by about 2 weeks and was almost 9lbs. We didn't really think too much of it. My second pregnancy, I did not gain as much weigh as the first but I measured quite big for most of it. My blood sugars were checked three times during each pregnancy and each time it came back normal. My water broke five weeks early with my second son and he was 8lbs 14 ounces. We know my due date was correct and even though he was large, he had a lot of neurological symptoms of a preemie baby such as "newborn shakes" and he struggled to keep his blood sugar normal for the first couple days. According to my doctors, I never had gestational diabetes. However, they never tested me past 24 weeks. I am now wondering if I developed it late. I don't know if something like that can lurk and hide and go undetected but can cause something like this.
I have an extremely hard time losing weight. I'm 5'4" and 198lbs. I've been eating the healthiest I ever have over the last two weeks. Keeping my calorie range between 1200-1500 cals a day. And I never go hungry as I was living off of oven roasted veggies all day long. I just don't think the vegan diet is working for me. Especially after reading the terry wahls website you posted, last night. I have eaten a lot of beans and it has left me mostly bloated and uncomfortable and sluggish. My G.I. doc said I could have chicken and fish ( hormone free) So I think I am going to do away with the beans and focus on fresh vegetables and chicken and fish.
Also, My mother has many cardiac issues ( not serious at this point) such as angina, etc. She is also short and overweight, like me. Her cardiologist about ten years ago sent her in for some gene testing and found out that she carries a gene for gluten sensitivity. So I know.. there is a hereditary link on my moms side. Her cardiologist stated that in order for her children to be affected, we would have had to also have received a gene from my father. My father hasn't had any testing done and seems to be fine so I have always assumed ( mostly because of laziness and my addiction to carbs and sweets) that going gluten free up until now, was just not worth it unless I knew for sure. I have had a celiac blood test. But it came back negative. My G.I. doctor was going to test me again but when I reminded him that I had already been tested and that it was negative, but that my doctor had mentioned that often times the blood test for celiac can give a false negative. He stated, that "that's not true." I really don't know what to believe about that because I've read a lot online about the celiac blood test giving false negatives too.
Anyways.. Back on iron supplements.. but not vitamin b 12. Not sure why.. maybe she is waiting to see how the iron is affecting me and if thats the cause of the numbness and tingling. I never thought about insulin and a connection to MS. Diabetes also runs on my moms side ( where MS is present the most and we also have that hereditary link to gluten sensitivity) so, I feel like I am connecting many dots now, thanks to you!
so of course I had to look check out the serum zinc levelsOur findings can hardly be explained by persistent intestinal malabsorption. The series was in biopsy-proven remission and showed normal serum zinc recordings, a highly sensitive marker of the mucosal state of the upper intestinal tract according to Jameson et al.
another wacky normal range.. too bad they didn't include a group of super healthy controls for comparison, so you could see the whole picture...............................Males (n = 12)......Females (n = 18)..Reference range
Serum zinc (µmol/L) 15.4 (14.2–16.6) 13.4 (12.8–14.0)...11–17.7
It is generally assumed that coeliac patients adhering to a strict gluten-free diet for years will consume a diet that is nutritionally adequate. ... Our results may indicate otherwise. We found signs indicative of a poor vitamin status in 56% of treated adult coeliac patients, including six on folate supplementation.
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