First Post about MS... questions?

This is the place to ask questions if you have symptoms that suggest MS, but aren't yet diagnosed.

First Post about MS... questions?

Postby CloudDog » Sat Dec 28, 2013 5:01 pm

These are the symptoms i have been worried about
this is most of what has happened unusual for the last 2 and a half years


Eyes back and forth many times brief for every few weeks a few minutes, not for a few months
Difficulties with balance especially changing direction at least once every few days kind of stumbling
Overshooting to reach for the kettle or the door etc thought this was due to losing weight, happened for a few hours/ days 3x in a year
Vertigo i thiught was labyrinthitis two And a half years ago a few days/ week or 2
Stiffness coming out of the sea ----spacisity for half an hour
Sometimes talking is difficult, slurring / spoonerisms.
Sometimes swallowing is a bit difficult
Mood swings rage/ tears once , recently, agitation
bladder problems incomplete evacuation
Sexual no interest unless ovulating
Breathless while resting, 3x in a few weeks
Fingers not always 100% in my control when typing sometimes
Infrequent blurred vision
Painful eyes dry eyes fairly frequent
Twitching more and more common, sometimes a twitch every 30 secs for an hour or two
Tension
Telegraphic speech ( reverting to baby talk)
This is like reading a list and saying yes yes yes - I have almost all the symptoms, not much pain, some tingling , some cognitive problems but perhaps no more than usual

Help!!!
I've got a neurology appt on the 15th
Not sure what to expect
Ill be phoning them to make sure I know if its just a chat
This could all be something else
But it seems to point to MS
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Re: First Post about MS... questions?

Postby jimmylegs » Sun Dec 29, 2013 9:46 am

hey there :) welcome to the forum.
do you have any reason to suspect that your diet and lifestyle might not be conducive to good health?
it is possible that nutrient imbalance could be playing a role here. it can be relatively inexpensive to discover whether nutrient status might be a contributing factor.
lots of research is available on the subject of nutrient balances associated with ms, if you are interested. mainstream ms diagnostic procedures don't yet make full use of the available research on nutrition for prevention and/or treatment of chronic disease including ms, so at this point the onus does tend to lie with the patient to a large degree.
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Re: First Post about MS... questions?

Postby CaliReader » Sun Dec 29, 2013 10:06 am

You can use google to find out about the typical neurology exam. I know it's hard to wait, but I'm not sure who you expect to talk with by phone. If they haven't seen you yet, they won't have much to say.

Take that list of symptoms to your appointment.

Sorry to hear you're going through all this. Good luck.
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Re: First Post about MS... questions?

Postby lyndacarol » Sun Dec 29, 2013 2:29 pm

CloudDog wrote:These are the symptoms i have been worried about
this is most of what has happened unusual for the last 2 and a half years


Eyes back and forth many times brief for every few weeks a few minutes, not for a few months
Difficulties with balance especially changing direction at least once every few days kind of stumbling
Overshooting to reach for the kettle or the door etc thought this was due to losing weight, happened for a few hours/ days 3x in a year
Vertigo i thiught was labyrinthitis two And a half years ago a few days/ week or 2
Stiffness coming out of the sea ----spacisity for half an hour
Sometimes talking is difficult, slurring / spoonerisms.
Sometimes swallowing is a bit difficult
Mood swings rage/ tears once , recently, agitation
bladder problems incomplete evacuation
Sexual no interest unless ovulating
Breathless while resting, 3x in a few weeks
Fingers not always 100% in my control when typing sometimes
Infrequent blurred vision
Painful eyes dry eyes fairly frequent
Twitching more and more common, sometimes a twitch every 30 secs for an hour or two
Tension
Telegraphic speech ( reverting to baby talk)
This is like reading a list and saying yes yes yes - I have almost all the symptoms, not much pain, some tingling , some cognitive problems but perhaps no more than usual

Help!!!
I've got a neurology appt on the 15th
Not sure what to expect
Ill be phoning them to make sure I know if its just a chat
This could all be something else
But it seems to point to MS


Welcome to ThisIsMS, CloudDog.

As you say, "This could all be something else,", but there is always the possibility that it could be MS. The MS diagnosis is made by ruling out other conditions which share the same symptoms; e.g., the painful, dry eyes could be Sjogren's disease (an autoimmune disease).

Take your list of symptoms to your neuro appointment on the 15th; compare the neuro exam your doctor proposes to that described by the University of Chicago: http://peripheralneuropathycenter.uchic ... #bloodtest

Request and keep copies of the blood test results for your file:

Blood tests

Blood tests are commonly employed to check for vitamin deficiencies, toxic elements and evidence of an abnormal immune response.

Depending on your individual situation, your doctor may request certain laboratory tests to identify potentially treatable causes for neuropathy. These include tests for:

Vitamin B12 and folate levels
Thyroid, liver and kidney functions
Vasculitis evaluation
Oral glucose tolerance test
Antibodies to nerve components (e.g., anti-MAG antibody)
Antibodies related to celiac disease
Lyme disease
HIV/AIDS
Hepatitis C and B

At this time, I think the testing for wheat/gluten sensitivity/celiac disease is extremely important. A person can develop a gluten sensitivity at ANY time in her life, even if she has been able to eat gluten in the past.

CaliReader and jimmylegs have given good tips.

We wish you all the best. Please let us know how it goes.
My hypothesis: excess insulin (hyperinsulinemia) plays a major role in MS, as developed in my initial post: http://www.thisisms.com/forum/general-discussion-f1/topic1878.html "Insulin – Could This Be the Key?"
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